terry_elaine
 

Hi! I had a stim implanted last year on my birthday. My story probably isn't much different than most out there but it is my life and it is pretty bleak at the moment. I'm suffering from major depression and I can't get my pain under control. I hate going into the doc because I feel like they think I just want more meds and that's definately not the case. I want them to cut the nerves or kill them or do something. I'm miserable!
It all started with a simple surgery. I had a cyst under my right scapula. 4 weeks in a sling, 2 weeks therapy....tada...all fixed. That didn't happen. The surgeon cut 4 major nerves in my back and neck. I've had 2 cervical fusions and a scapulo/thoracic fusion...(my scapula is fused to my ribcage) which caused intercostal nerve damage and damage to my right lung because I can't deep breathe.
I'm on 15 mg of morphine 3 times a day and 350mg of soma 4 times a day and valuim in the evening. I also take trazadone, lexapro and mirapex. I'm a walking pharmacy and I hate it! I'm a zombie but I can't function without the drugs.
My stim is implanted under my right arm and the leads go across my back to my neck on the right. The coverage is supposed to be my scapula, down my right arm, my neck and my shoulder. It helps but I'm miserable.
My children say I'm negative all the time but they don't understand the pain I'm in constantly. I have to fight it day and night and it wears me out. I have few friends left because I don't like going out and I'm tired all the time. They got tired of hearing about my pain long ago and I got tired of explaining.
So.........there you have it....desperate in WY.

WOW Terry Elaine~ You definitely have alot on your plate. I am glad you found us, as there are members here who also live their lives in chronic pain and suffer from anxiety/depression. .

How awful for all this to happen to you after your scapula repair surgery.

I wish I could help more, but this board is full of good info and there are many caring members here, so your'e not alone.

Welcome to Neuro Talk and hang in there. Pain is pain, no matter how you spell it!

take care. :welcome_sign:

Terry,

I'm sorry to read about all of the pain you've suffered.

I don't know if you might see or have seen a PM (Pain Management) doctor. It might be possible for one to do as you've mentioned re: the nerves. There is a non-invasive procedure: RF (radiofrequencing), which temporarily deadens the nerves. I say temporary because most generally the nerves will regenerate, but, for many the (positive) effects of the procedure can last from a few weeks to several (18) months.

If you've not seen or visited there is a CP (Chronic Pain) forum here:

http://neurotalk.psychcentral.com/forum10.html

There is also a SD (Spinal Disorders) forum:

http://neurotalk.psychcentral.com/forum22.html

There are people here who do understand the pain you've felt and are supportive.

I'm sorry that you had to find the forums here, but please know that you won't feel as alone as you have - because people here can relate to how you've felt and the pain you are experiencing.

Hey Terry,

Pain is pain. Period.

Hang in there!

Nice to see you here.

I'm new too, and can't manage to get out of this forum! I'm enjoying saying

HEY!!!

Hi Hon.

You have had more than your share of crap, now haven't you.

Nothing I can add. I have never been in your situation.

Your family doesn't understand, unfortunately.

But we do. We can be here and we can listen.

And we can send you gentle hugs.

So here's one
:hug:

Take care,

Melody

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Hi Terry..
While I've never been thru anything like you've dealt with, I and just about everyone here can understand pain and how difficult it is to have it be a part of your life. While I'm sorry for the reason you found this board, I am glad you found it. Having someone to "talk" to who understands can make such a difference.
Again, WELCOME!:)

Terry,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Like Melody said we are always here for you. :grouphug:

Again welcome, looking forward to seeing you around.

Darlene:hug:

Hi, Terry Elaine! :Wave-Hello: Welcome to NeuroTalk!

Hang on, you are now in a very caring and encouraging community. Let us envelope you with support. :)

Hello
Welcome to neurotalk. What sort of pain are you experiencing?
If you need anything just ask.
Thanks