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-   -   insideout (https://www.neurotalk.org/trigeminal-neuralgia/37262-insideout.html)

Burntmarshmallow 01-25-2008 09:52 AM

insideout
 
INSIDEOUT-BMW 12-07

Pain is hard to express,
When invisible to all the rest.
Looking “normal” in every regard,
Though my lip feels burnt and charred!
Biting breeze, a clawed up mess,
Wonder if there’s hanging flesh?
I touch my face even though
Electric jolts will shoot I know.
Still I poke, test this pain.
Searching for limits again and again,
Twitching jaw I can’t stand.
I hold it still with my hand,
Praying the leads won’t further move…
When my nerve is in a groove.
Been on all the medication,
Thank my guide for meditation
Doctors are at wits end
Thank my God for my friend’s
The world doesn’t understand this much
Thank God for healing touch.
I don’t think there IS a cure.
I believe but I’m not sure,
The answer is inside of me.
To accept what must be,
Learn to cope and how to react.
When the monster begins to attack,
And pass along, yes need to share.
To hear that another dose care…
To say you’re not alone,
Living in the face pain zone.
Invisible to most but not to “us”
We have been thought some incredible stuff.

Doodle bug7 01-30-2008 11:47 AM

I think you have a gift with poetry.
 
Tina AKA Burnt marshmallow-------------------
Excellent poem Fantastic poem outstanding poem Great poem beautiful poem
inspirational poem creative poem sensational poem terifffic poem!!!!!!!!!!!!

I THINK I LIKED YOUR POEM
Truely a believer,
Patti:)

Fowki 01-30-2008 01:11 PM

Quote:

Originally Posted by Burntmarshmallow (Post 196527)
INSIDEOUT-BMW 12-07

Pain is hard to express,
When invisible to all the rest.
Looking “normal” in every regard,
Though my lip feels burnt and charred!
Biting breeze, a clawed up mess,
Wonder if there’s hanging flesh?
I touch my face even though
Electric jolts will shoot I know.
Still I poke, test this pain.
Searching for limits again and again,
Twitching jaw I can’t stand.
I hold it still with my hand,
Praying the leads won’t further move…
When my nerve is in a groove.
Been on all the medication,
Thank my guide for meditation
Doctors are at wits end
Thank my God for my friend’s
The world doesn’t understand this much
Thank God for healing touch.
I don’t think there IS a cure.
I believe but I’m not sure,
The answer is inside of me.
To accept what must be,
Learn to cope and how to react.
When the monster begins to attack,
And pass along, yes need to share.
To hear that another dose care…
To say you’re not alone,
Living in the face pain zone.
Invisible to most but not to “us”
We have been thought some incredible stuff.

Beautiful. You have captured the experience perfectly!

stewart-tn 02-15-2008 01:23 AM

Living in the face pain zone
 
Thank you - you have captured it so well. The "Pain is hard to express, When invisible to all the rest."

And the "Biting breeze" ..... and that strange compulsion which makes me "touch my face even though Electric jolts will shoot I know."

"And the Twitching jaw" that stops me falling asleep.

You have captured so well what it is to be "Living in the face pain zone."

peace

stewart-tn

Burntmarshmallow 02-21-2008 11:29 AM

Electric nightmare -BMW
Powerful, profound
Hidden from view
Anesthesia dolorosa
Neuro stimulator
Trigeminal neuralgia, to cope, accept, deal
Out of options for now
My face, mouth ,my teeth ,my lip

Present always, part of me
A horrible monster to tame
Inside, in charge, IS REAL
Not understood, nerve snapped, not giving in


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