Help! Do I have ALS? Something else?
 

Hi,

Below is what has been happening - any ideas? directions?

Here has been the trend the last week. Each night I go to bed my body starts to shake - not violently though at this low level. In the morning when I wake up it is still doing this. Some days I can get right up out of bed, though today it felt as if I was paralyzed. I wake up fatigued. The odd thing is as the day wears on things seem to get better, though today my arms and hands are starting off rusty. Overall though this affects me all over. This has been going on occasionally for longer, i.e. months, though has really picked up of late.

That's the main thing. I have an assortment of things going on from my head down to my toes. Hands generally have been okay. Somedays foot drags, other days it does not. Twitching is sporadic. Seems like I have chills as if I am trying to get over something.

The above doesn't sound like ALS, though then what? I can't find too much that fits the above.

Neuro appointment two weeks away. Not that optimistic, though as the clinical exams really only cover a little bit. Any thoughts? Suggestions on other blood work or other teststo inquire about?

Thanks!
MV

Hi MV.... in all honesty it doesn't sound like ALS to me...but I'm not a doc..my best advice would be to try not to worrry about it until you see a neuro...I know easier said than done...as to what it could be other than ALS so many things from anxiety to other types of illness and injuries...many of which may be very treatable..Lisa

Hi MountainView,,,Please also see the post.... Please help...Paul answered someone with similar concerns and gave a better explanation than I could write...so please check out his response on that thread...Lisa

http://forums.braintalk2.org/showthread.php?t=3795

Hi Lisa,

Thanks for the encouragement.

The hard part is having things continue to get worse. My approach is to try to manage the symptoms. Last night I used an electric blanket and although it did not stop the shaking I did not have chills from it being colder, so this morning I'm a little better than yesterday. I really don't know if the neuros have the tools to diagnose. From reading many posts it seems many on BT have unique cases that don't match a particular syndrome.

MV