Still new at this
 

I've only been dx since Nov. 07, with my testing only taking about 4 months. (I kinow--lucky, huh?)

It's weird, I can look back and notice a few things here and there that seem to have been MS, or maybe not. No way to tell, so I try to just forget about those and move on.

But ever since the testing for MS began in August I've had a lot of sx and they haven't let up since. Of course some days aren't as bad as others. I might be a little slow, but is this what the rest of my life will be like? Tired hands and legs every day. Blurry vision for 11 months, then clear for 2 then blurry again? Tired tongue (gotta be the weirdest!) jaws and throat. And don't forget cog-fog and jello-brain!

Are these little glitches always going to be there and be somewhat constant?

I had a check up with my neuro in Jan, and a 2nd MRI in Dec. 4 small lesions in my brain. Just the past two weeks I've noticed balance issues: I'm teetering left a lot, and can't tell if its balance, or legs, and a tiny bit of foot drag on my right. Since I was just in the dr office and the changes are very minor I'm planning on watching things until my next appointment in April.

It seems so odd that these sx were not there at all a couple years ago and now are so prevelant. I guess I want to know I am typical for RRMS, when so far (excluding possible undx flares prior to Nov. 07) there has been no remission, unless two days counts as remission?

Catch,

Are you on any DMD's? Sounds like you might be having a flare.

Has your neuro ever given you IVSM?

Hang in there - Chris is going on one year in April and it has been a wild ride. Everyone says the first year is the worst.

Keep us posted on how your doing.

It does sound like you could be in flare-up take care of yourself Catch.

Just started my third month on Copaxone.

Hi Catch, Nice to meet ya!

I wax diagnosed in May 2007. It feels like yesterday and 10 years ago at the same time LOL.

I'm in the middle of a flare right now. Keep track of what's going on and call your neuro asap. You could be in a flare and you might need some 'roids.

Good luck and my thoughts are with you:):)

I hate to say this but it sounds like you're progressing in your MS. It also could be that you are much more educated about MS and therefore more attentive to your body thus noticing more and different symptoms.

Just keep your neuro informed on all of these developments.

Flare up or not?
 

Thanks all, for your input. Here's my summary:

Maybe I'm just highly in tune with my body. That is true, but it's pretty hard not to notice that your tongue is sore...lol

I might be in a flare. If so, do I need 'roids? Since I'm not severely impacted, I'm thinking not, but then again, what do I know?

Or, worst case, I could be progressing (my own fearful thought). And yet, the progression is extremely mild: no blindness, no limp, no severe pain. And the two MRIs I've had (one in Aug and one in Dec) show no changes. That should be good news, right?

My options: Call my neuro now, wait a few weeks to see if anything changes, or wait to see her in April.

I've spent my whole life "playing it by ear" but when it comes to your health, and your ability to see, speak, walk, work waiting just stinks.

Been through some tough crap in my life. Now I know why--All preparation for this!

Catch,
 

I waited until I was progressive to bother to notice it all... well I noticed, but ignored things. Now I sound alot like you... constant symptoms. I can think back with 'bout every symptom and now know it was going on for years at a lesser degree. It kinda puts things together and inperspective... Not sure this is helpful... but I know how you are feeling. I was just dx this Dec

Actually, that helps. I think I'll call the neuro today, just to make sure she understands what I thought she did: that I have these symptoms constantly.

:hug: Sorry to hear there's been little let up in symptoms.

I understand. Same here since my DX process began in '06. The docs are trying to figure me out since I don't complain about my symptoms much in between visits, but my clinicals get worse each time I go.

My doc is MRI happy, so I keep track of temperature changes or an illness that might be making my MS go nutty. I only call if a totally brand new symptom hangs around for about a week.

I've been on Copax since May, and my recent brain MRI shows it's been stable since then. So I also understand that.

Hang in there, and know you're not alone.