curious about dx
 

I was just wondering if anyone here had an MRI that said the leasions were not in the typical place for MS? Is there a typical place?

I have a lesion in the rt cerebellum, which is a little unusual. Most people have them in the periventricular area, or in the corpus callosum.

And I trust your word Jen, because I know you to be knowledgeable. Yet I was told by a previous neuro that my lesions were not in a typical area, and they're periventricular.
:confused:
I looked it up on NMSS and found that the neuro was incorrect, this was a typical location. That was part of the reason he became a prior neuro.

"Lesions" is just a generic word for "damage", and not necessarily just damage to the brain. People use the word lesions to describe open wounds sometimes.

Attached is a link to "demyelinating diseases", which describes the various locations of lesions, based on the condition. There is a fair bit of info on MS lesions in this document.

http://spinwarp.ucsd.edu/NeuroWeb/Text/br-840.htm

They are looking for the right size/shape and location of lesions for MS, either in the brain, T or C spine (or all of the above, in my case :p).

Cherie

Cat, my first mri report had a lot of maybes on it, also a notation " given the location a demyelinating disease is not entirely excluded ".

This meant exactly jack to my first 2 neuros, even after lesions were found on the c-spine with a notation " consistent with a demyelinating process such as MS ".

A good neuro is going to do the needed testing to dx it or excluded it and find the true cause. Sometimes a passage of time is needed to confirm.

My brain MRI said that I had little white "spots", but that they were not the typical size or shape and that they were not in an area typical of MS.

I was surprised four months later when I had my spinal MRI's (my regular doctor wanted to see if I had any degenerative disk disease since I was having a lot of back pain) and that's when they found the 2 lesions in my spine. (I'd asked the doctor to order some contrast just so we could check for MS since I was in the MRI machine anyways.)

Yes..I have 11 not in the "typical" place. :confused:

Thanks for all the comments. I had an MRI of brain and cervical spine. The Brain reads like this. Non-enhancing subortical and deep white matter punctuate hymperintensities in both cerebral hemispheres, a non-specific finding with the fifferential diagnosis tha includes MS buth MR findings are not pathognomonic of MS??????
The c-spine: degenerative disc disease with bulging disc annulus at C6-C7 No evidence of demyelinating plaque in cervial cord .

I also had a lumbar puncture which was normal. Iam just tying to wrap my bain around this. I feel like crap but all the docotrs can not come up with a diagnosis. BTW this all started witha b12 defiency.

Yes, my MRI said the lesion/lesions was not in a typical place. The main one mentioned was one in the frontal lobe. It was active at the time, I had two other small old ones that I don't remember where they were because they were barely mentioned on the report.

I'm atypical, too. The neuro says it is definitely demyelinating, but not typical of MS. That is why my dx is CNS Demyelinating Disease - he also calls it atypical MS. I have been told that my particular lesions can be seen in MS, but it is the lack of other more typical lesions that is confusing my case.

So, I have lesions that are seen in people with MS, sx and neuro exam seen in people with MS, some amount of permanent damage, but I'm still a mystery. At lease my neuro treats my sx and has done pulse IVSM which really helped with a lot of the disability I had. A lot of people with less than typical results get dismissed completely.