Early consult tomorrow
 

'Tis the season to see neuros it seems, LOL. :D

Tomorrow is going to hurt. First available appointment is 8am (ouch) since he is the top MS guru of the neuro group I go to.

This is a consult asked by my regular neuro. He's not sure whether or not I may be progressive and he wants another's take on this. Plus the guy I'm going to see is the only one in the office who could prescribe Ty if they think I need it.

My brain MRI has been stable since May, but my clinicals are getting worse. So much fun. :rolleyes: My DH thinks it's 'cuz my current neuro doesn't know what to do with me, LOL

Just hoping for something to come out of this besides more testing.

Thanks for listening.

More testing? Don't worry about it and just go with the flow. It is not unusual for a knowledgable neuro to ask for a second opinion by someone who may specialize in MS. There is always something he may have missed in your overall evaluation.

Look at his appt as a good thing and only in your best interest. Also, be prepared for whatever news you may get, positive or negative.

As a suggestion, I would have your DH accompany you into the examroom which will give you a two on one advantage and your DH may retain info that you may not catch or forget in light of everything going on.

My wife has been with me on every neuro appt since day one in 2000. What a relief and help that has been. The neuro also gets another person's point of view on your symptoms.

Good luck and keep us informed. :hug:

I always try to get the first appointment of the day. They don't have a chance to get sidetracked on anything else and I have their complete attention (or most of it at least!). It's hard to get up and out that early - I know - but it's worth it for something this important.

Good luck - I'll be thinking of you and sending good thoughts. :hug:

Hi Finlady,

Good luck with your appt, I hope you get good news, that it turns out NOT to be progressive and maybe Tysabri will be available to you if you want it. Maybe they'll find a reason for the clinicals getting worse and do something to help you too? :hug:

hopin' right alongside ya, Finny!

:hug:

Good Luck with your consult, FinLady. I hope all goes well.:hug:

Best of luck with your appointment!

Thanks everyone. :hug:

DH is going with me, which makes this even more painful. He's so hard to wake up sometimes, LOL

I'm glad to know it's not too unusual for a consult. I'm hoping that whatever happens, it will turn out ok.

Now to bed with me. ;)

Good Luck to you tomorrow morning! Please let us know how it goes!:)

UPDATE:

I've got some good news. The Neuro thinks I'm still RRMS (could tell he didn't like this term because he used "air quotes" with his fingers). He thinks the copax is working for me thus far. He said it's not unusual to have a flare or two when starting out since it's not totally in the system yet.

He did go over the pros and cons of Ty. He said I didn't need to go that way right now, but he suggested it as the next option if the copax stops working.

He did take some blood to rule out anything else that might be causing my fatigue. He also did an ultrasound of my bladder. Yep, I'm retaining - which is causing some of my problems. It's not to a major point yet, so he's confident that we can wait a little while as long as it's not interfering with my life yet. Also he prescribed zoloft to see if some of my fatigue is caused by my small funk of mild depression, and he didn't want to have more than one new med in the mix.

There were some things he asked and talked about that made me realize why he's the top guy in the office. He also thought my regular neuro was a nut for calling my LP "inconclusive". From what he saw, it was positive for MS.

So the consult was worth it. :) Things are looking up. Thanks all for listening.