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-   -   November Is... (https://www.neurotalk.org/epilepsy/391-november.html)

Rocking4Epilepsy 09-02-2006 11:01 AM

November Is...
 
National Epilepsy Awareness Month.

Lets share some ways to open eyes and erase the ignorance to epilepsy.

Our family all wear our purple awareness pins all year round. Good for starting conversation.

If we can tell one person a week about Epilepsy and share our story It may take awhile but we can help educate one by one.

What are some other way to help open eyes to Epilepsy?

Starting soon our organisation will be putting together a book of people stories about epilepsy hope to help get the word out even more.

Porkette 09-02-2006 02:15 PM

Hi,
Since I work in public school as a teacher aide I teach students and staff about E each yr. Many students don't understand it and are afraid of a sz. so I teach them what causes sz., and what to do if they see a person have a sz.
The past 2 yrs. I've had a workshop for all the staff in the school to teach them about E. what to look for if a student has a sz, things that can trigger sz., how a student can be moody or tired from their AED's etc. The school principal was angry with me for doing this but the students and staff were very pleased asking many questions to learn more. Now I don't have to worry about the principal being angry because he lost his job for cutting people down with E. I stood up for everyone that has E. or other medical problems. Here's wishing you well and May God Bless You!

Sue

Rocking4Epilepsy 09-02-2006 05:22 PM

Thats great to hear you try to educate the school.
Can I ask what grade you teach?
Do you have epilepsy info in the school library.

Keep up the great work I know it takes alot to educate year after year.

Hugs

Porkette 09-03-2006 05:37 AM

Hi,
I work with grades 6-8 and every now and then a science teacher from the high school asks me if I can come over and teach the students about E. The school library doesn't have that much info. on E. so I teach students about what it was like have 2 brain surgeries, what can cause sz., and I teach them about what AED's I've taken and their side effects on me. The one big thing I teach students is just because they may have E that can't stop them from leading a normal everyday life.
Wishing you well and May God Bless You!

Sue

Rocking4Epilepsy 09-03-2006 02:26 PM

That is great.
The best awareness is sharing we we live.

Hugs

Rocking4Epilepsy 10-16-2006 10:01 PM

:D :D :D bump :D :D :D

Ellie 10-16-2006 11:07 PM

I'm pushing into getting myself worked into the schools here for educational purposes. Additionally, I dumped some of the money I didn't have into these really neat guitar picks (in lavender) with the awareness ribbon on it. They are actual guitar picks that can be used, or can come in the form of necklaces. I know several bands who will be selling these at shows to promote awareness and raise funds for awareness, too.

I thought they were a great find to come across, because they are unique and fun (I use mine!).

Rocking4Epilepsy 10-17-2006 06:42 AM

Thats a neat idea....
I wonder if they come on purple to match the epilepsy awareness pins..

We have got over 1,000 pins as you see in my icon for awareness...

They go real fast...lol we have to keep getting more this is like our 4th batch we have gotton

hugs

Ellie 10-17-2006 11:59 AM

I have 300 purple picks coming in and 300 purple pearl (wooo) picks as well. They are both holding until I figure out what to put on them, any ideas??!!

Will be a ribbon one one side and 'something' on the other. Or maybe both on one side?

Attached is a sample of the pearl one. They are more 'pearly' in person than online. The lighter shade of purple looks blue, so I went with the one shown.


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