NeuroTalk Support Groups - Hey everybody I found ya

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- - Hey everybody I found ya (https://www.neurotalk.org/multiple-sclerosis/39737-hey-found-ya.html)

Hey everybody I found ya

Hey there ev1. Well I have been in limboland. No fun. I have had my EEG & SSEP which are normal....arrrghh. I dont know what is wrong with me. I have had blood work done. Normal same with MRI.

Hmmmmm......

I dont know maybe because I only had 1 major flare in December that lasted about 1 month. I still have some residue effects. Burning, tingly, numbness.
At least my cog fog has lifted. Thank goodness.

Well I just wanted to say hello.....:)

Mindy

Hi Mindy!
Glad you found us!! Glad to hear things are starting to get back to normal. I'm pretty much back to normal too except some buzzing in hands and feet.

What took you so long?? LOL!!!!

Welcome!

What took me so long? Well I've been going thru tests. I dont know what I have. My neuro says since my MRI and SSEP is normal that it is not MS. Well I know how MS can be very deceiving. So I hang in limboland....LOL. I see that I have good company here.

I'm happy to see my fellow friends here;)

Welcome Mindy...Glad you found us..:)

Hi and WELCOME!!

This is a really great place and I know you will really like it here.

I have found everyone is so friendly and helpful and moderators are so nice!!

Quote:

Originally Posted by mindyandy420 (Post 222338)

Hi Mindy, it's good to see you here, I wasn't sure how to point you in this direction so I'm glad someone wiser than I, did, or that you found your way on your own. :)

I think your use of the word deceiving is real appropriate, and the diagnostic process can also lead us on long and tortuous paths. I swear, the way some people have been treated while trying to find answers, it amazes me they stay as well, and as sane, as they do.

I think I am going to be the Queen Mum of Limboland... I was actually dxed w/ MS in 1979 based on criteria available at the time. Dx was taken back with my first clear MRI.

It has only been in the past 1 1/2 years that most actual tests have come back abnormal or positive for me. But, even with
5 Obands, abnormal VEPs, BAERs, SSEPs, and increasingly frequent and worsening episodes, yada, yada...with a clear mri ...it is no diagnosis and symptom treatment only. Time for new MRIs.

I can only hope that you, and GJ, don't have to wait a whole lot longer, at least relatively speaking, and that in the meantime you BOTH hang in there and keep looking for answers.

:hug: and apologies....I'm way too "talky" the past two days. Don't know
wha's up..:confused:

Again I'm glad to see you here.

Quote:

Originally Posted by AZjanie (Post 222407)

Hi and WELCOME!!

This is a really great place and I know you will really like it here.

I have found everyone is so friendly and helpful and moderators are so nice!!

Even I'm nice Mindy!!! *grin* Glad to have you w/us.

Jump in and join wherever you see fit. Oh, and here's a lil umbrella drink to help ya relax. Welcome!!! :welcome_sign:

Welcome Mindy, and I'm glad you found us! :D

you found us...hi Mindy....hugsss
I am at both places...and wish you luck on the dx journey...totally hope it ends with a dx quicker than mine...hehe still limboing...hugsss,sarah

hi mindy,

glad you found us.
sometimes it takes lesions a few yrs to show up on an mri.
it could just be that with more time whatever is wrong will show up better to your dr. of course i hope it's not MS.

hope you're doing better.