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-   -   Is there anyone from Neuropathy.org Website?? (https://www.neurotalk.org/peripheral-neuropathy/39951-neuropathy-org-website.html)

Cowcntry 02-26-2008 12:52 PM

Is there anyone from Neuropathy.org Website??
 
I just wanted to say :Excited: [B]Hello and I am glad you are here. It's great to get support from both sites, especially since I do not have a Neuropathy group in my area. However, I am thinking about starting one up. Has anyone started a group? Thanks and have a wonderful day. :hug:

Michele:wink:

glenntaj 02-26-2008 04:21 PM

I lurk--
 
--and very occassionally post--on the Neuropathy Association website. A few others here, such as Nide 44 and DanP, do as well (they tend to post more often than I do).

There are some here who used to post there, but do not anymore . . .

I used to post much more often, but I have found that Association website, while containing good summary information, does not have as user-friendly a board format at this and some other ones. (I suspect this is much of the reason for the previous statement.)

Cowcntry 02-26-2008 08:20 PM

OH....
 
Quote:

Originally Posted by glenntaj (Post 224840)
--and very occassionally post--on the Neuropathy Association website. A few others here, such as Nide 44 and DanP, do as well (they tend to post more often than I do).

There are some here who used to post there, but do not anymore . . .

I used to post much more often, but I have found that Association website, while containing good summary information, does not have as user-friendly a board format at this and some other ones. (I suspect this is much of the reason for the previous statement.)

I thought I had recognized Nide 44, I think that's Bob. I like the information on the Neuropathy website, but you are right in a way it's not user friendly. It's hard to tell when someone has posted something.

Augh my feet are burning & hurting and I could just scream!! Ok, enough of that. Thanks for your post. :hug:

Michele;)

Lamplighter 02-26-2008 11:14 PM

Starting support groups
 
I am actively involved with The Northern California Chapter of The Neuropathy Association. We have now started 30 support groups in Northern California with two other groups joining the network. We'd be glad to send our start up guide to anyone interested in starting a group. Our next information meetings to hopefully start a support group are Redwood City, San Bruno, San Rafael, Modesto, Merced, Fresno, Truckee, Susanville, and Alturas. We hope to be in the north coast in May. If you are in any of these areas and need information about time and location, please let us know by responding to this post. Our goal is to have a support group within 50 miles of everyone in Northern California. Most are much closer than that. We welcome Members-at-Large. They receive the monthly newsletter. A painfree and restful night is wished for all. Lamplighter

Cowcntry 02-27-2008 12:08 PM

LampLighter, I am so glad you are involved with this Association. I just got some information from Paul G. in New York regarding starting up my own group here in Tallahassee, Florida. Their is not a group here in the panhandle and we really need some our way. The closest one to me is in Jacksonville, Florida. I plan on going to their meeting this coming up March 8th and am looking foward to what goes on. What does your start up guide consist of? Is it the same as the manual that Paul sent me? I have never formed a group so it's pretty scary and exciting at the same time. We need to get the word out about peripheral neuropathy and we especially need support.

Thanks,
Michele


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