NeuroTalk Support Groups - Working On Goverment Funding For The Cure OF RSD

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Working On Goverment Funding For The Cure OF RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/40124-goverment-funding-cure-rsd.html)

Lindecker01

02-28-2008 01:31 AM

Working On Goverment Funding For The Cure OF RSD

Hi Everyone

I am in Colorado and there is a lady out here named Helen. She has arranged a meeting with a city council person and is pleading for funding and goverment reconigtion for MEDICAL RESEARCHH FOR RSD. There has been a lot of work done out here. She needs people with RSD to contact her and get on the database to show the need for this recognition. Her website is (rmrsd.org). The group is called Rocky Mountain RSD/CRPS. You can also contact Helen on this website and get information on this research that they are trying to get funded. I wait each and every day for the cure of RSD as I have full body centerlized for over 11 years now and to top it off I am pain medication intollorant. I can't even take colindine cream due to extreemly low blood pressure (80/60) on a good day. Does anyone know natural things that work and I am open to sudgestions.

Thanks everybody and don't forget to contact Helen as Goverment Recongnition would be a great start.

Goodnight

roofee

02-28-2008 03:01 PM

RSD Therapy

I've been reading a lot about Hyperbaric Oxygen Therapy as well as some articles on Cold Laser Therapy... also, taking high doses of antioxidents (like grape seed extract (300mg 2x day) and/or juices like Acai' seem to help some in some people...

Best of luck to you in looking for some relief...

Marla

02-29-2008 01:11 AM

Hi Lindecker,
You asked, "Does anyone know natural things that work and I am open to suggestions."
Try some essential oils to either rub on your skin or bathe in, they will help relax you and that is a very needful thing. Try some deep breathing exercising along with some acupuncture, not to be confused with acupressure with the needles, although some have tried that and have had rave reviews on it, others.....not so good!!
And Roofee is correct about antioxidents, it does seem to help.

I will keep you in my prayers!!

Love, Peace & Blessings,
Coach Marla

dreambeliever128

02-29-2008 08:39 AM

Hi and thanks

for the website. I went over and read quite a bit of it and it sounds like they are trying hard to get research and they do have some great info on things like Ketamine treatments.

I wish it was closer to me but as far as I can tell it's up toward Boulder.

Ada

nopainever

03-01-2008 12:49 AM

Please check this out...

http://originbiomed.com/usa-en/index.php

I have ordered the Neuragen PN and have had 2 other RSD'ers order it in 1 week...It's amazing...You can read the testimonials on the website from other RSDers...It's 100% Homeopathic and it topical....it takes away 75% of my pain in 5-10 minutes...

Hugs,
Heather

ali12

03-01-2008 07:30 AM

Heather,

Thanks for sharing the link with us all. I am so pleased that you have found something that takes away 75% of your pain - that's great.

I will check it out and see what my mom says

Thanks again

Alison

mtmelody

03-04-2008 11:20 AM

Hi
My name is Melody and I live in Sterling CO. Where do you live? My son has RSD and it is awful.
Thank you,
Melody

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