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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   John Hopkins? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/40195-john-hopkins.html)

debbiehub 02-28-2008 11:10 PM

John Hopkins?
 
My physical therapist keeps telling me to contact John Hopkins as they may be doing something innovative there. Anyone know anything about Hopkins?

Debbie

gigglebabe 02-29-2008 01:06 AM

Quote:

Originally Posted by debbiehub (Post 226850)
My physical therapist keeps telling me to contact John Hopkins as they may be doing something innovative there. Anyone know anything about Hopkins?

Debbie

I've not heard of anything Debbie, or seen anything online. But I'll keep my eyes open and yell if I see anything.

Hugs girl
Debbie

amoamarone 02-29-2008 10:29 AM

Johns Hopkins for Debbiehub
 
My husband started going to Johns Hopkins for ALS last month. He has only been once so far, but we were impressed with the doctors and the facility. It is a research university and I believe they are outstanding for treating many difficult diseases. Good luck!

nopainever 03-01-2008 01:09 AM

Debbie...
 
The 2nd doctor that Dx'd me with RSD graduated from John Hopkins and he was the most thorough doctor I have met to this day...I felt so comfortable with him and he knew, with out a doubt, that I had RSD.

Hope this helps,
Heather

tayla4me 03-01-2008 06:28 AM

Hi Debbie,

I have heard that John Hopkins has an extremely innovative Pain Management team which includes Anaesthetists, Physiotherapists, Psychologists and Neurologists. On reading their philosophy/mission statement it seems they are truly committed to ensuring their patients are listened to and that treatment is evidence based and individual care.
Unlike some Pain Management teams it seems they do NOT focus on removing all medications as they believe that pharmacology is an integral part of treatment for some patients.

This sounds really worth a trip:)

Wishing you good luck
Tayla:hug:

debbiehub 03-01-2008 11:07 PM

Hopkins
 
Thanks for your info but I am wondering what they can offer me as I have been thru it all including ketmine infusion....

tayla4me 03-01-2008 11:30 PM

Quote:

Originally Posted by debbiehub (Post 228045)
Thanks for your info but I am wondering what they can offer me as I have been thru it all including ketmine infusion....




Not sure Debbie as I can't find the specifics of their program but perhaps they may include graded motor and mirror imagery as that seems to be a treatment recommended by the World Pain Institute.
If I can find any more I will sure let you know.
cheers Tayla


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