To Tysabri or Not To Tysabri--That is the question!
 

I have a big ol' decision to make here! Both my neuro and PCP are very enthusiastic about Tysabri, especially for me since I have Crohn's Disease as well.

I know there's that great Tysabri board here, and I plan on reading it during the next few days, but I thought I'd post down here and see if any of you can recommend any great websites that can give me the entire picture, no sugar coating :wink:

BTW, I know I'm hijacking my own thread here, but I want to thank all of you again to all of you for the great welcome you gave me! I wanted to introduce myself more properly. Here's the quickie version:

I live way up in the Rocky Mountains of Colorado, above 9,100 feet! I came here because I was tired of touring---I've been a singer and pianist all my life, started as an opera singer, got sick in England, came home, DX with Lupus and Crohn's, started up again with a radio show, started touring again as a pianist/singer with cruise lines, met my DH (a passenger!!!:eek:) on one of the ships, married 3 weeks later :p and then he joined me for more tours, more ships.

Health gave out, couldn't tour anymore, came here to the mountains, went back to writing for newspapers, which I do from home, write regularly for two newspapers here in Colorado (features and my own column, where I can be myself!) and gig when I can, with my pedal harp and accordion. That's All, Folks!!!!

When life hands you lemons, make a scotch n' soda with a twist!

Hi Keely

My best advice to you is to find a good neurologist and ask the hard questions. You've got a lot going on and since Tysabri has been approved for both MS and Crohns, you got a drug that can be used to treat both. But with the Lupus thrown in, who knows.

There is not one website that will give you the straight scoop on this drug. You will get some here, some there, some somewhere else. The thread above will give a lot of good information, but since the drug is so new on the market, there is still a lot of research being done.

There is an AAN Conference in April where a lot of research papers are being presented by a some top notch researchers who are testing the waters right now. After that conference, the New England Journal of Medicine will publish what was accepted by the community. What is scientifically acceptable as accurate information.

For now, you can gleen what you can from posts here, ask questions from those who are on the drug, and talk to your neurologist. That's the best route to take.

Good luck and welcome to Neurotalk and the MS Community here! ;)

Welcome to NeuroTalk!

Hi Keely, and welcome to the forum.

I think you will find the "no sugar coating" straight goods discussed in the following threads (and LINKS). Everything that has happened with Tysabri, since the get-go, has been discussed in these postings:

http://neurotalk.psychcentral.com/thread39760.html

http://neurotalk.psychcentral.com/thread37891.html

There are many people that seem to be doing very well on Tysabri . . . but since the drug is still fairly new, there are new potential risks and concerns brought to light as time goes on. None may ultimately be of concern, but weighing up the pros and cons is important.

Once you go through those two threads (and links), you can decide what you want to research further, for your own piece of mind.

Cherie