NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Trigeminal Neuralgia (https://www.neurotalk.org/trigeminal-neuralgia/)
-   -   At the end of the rope (https://www.neurotalk.org/trigeminal-neuralgia/40978-rope.html)

ewjanz55 03-10-2008 05:51 PM

At the end of the rope
 
I live in Chicago and have read all your threads on TNA and currently
dealing with the no sleep issue. Over the years I've done the meds,
been to the doctors, done the gamma knife and right now with 3 days of
no sleep I'm looking at the end of ther rope. I need to sleep....ANY SUGESTIONS...?
Symptoms; burning toungue lightning strikes almost all the time now....24/7:confused:

Burntmarshmallow 03-10-2008 07:47 PM

I've been doing the no sleep thing for years half because of my own t.n. and half cus my hub snores soooooo dang loudly and refuses to use his c-pap machine, that I cant sleep even if I begged my God. I find exercise of some type to help and a boring book or chill music. chill as in soft relaxing.
what type of meds are you on? have you asked you doc or neuro if a sleep aid would help you? have you tryed meditation or hot baths? I am lucky to get 2-3 hours sleep. but naps are good when I can catch one even a 20 min one is great. Wine a glass or 2 helps me relax and sometimes helps me feel sleepy. You just better keep on looking at that rope honey and do not let go !!!!!!! Has you doc suggested anything to help you? Like I have to sleep in my "happy chair" cus it is the only comfortable thing , I do not have to lay all the way back or anything... and breathing exercises .
I surely wish I had controll over the sand man ... I would send him directly to your place a.s.a.p. :hug:
I hope something I mentioned helps you captures a pillow full of ZZZZ's
there is chat rooms here too and if you cant sleep pop in and chat some of us are so boring we can put ya to sleep. :wink:
I will pray you get the much needed rest and sleep you need soon.
Peace
BMW

ewjanz55 03-10-2008 11:11 PM

thank you for answering me
 
:)I think im losing my mind. I found if I eat, digestion must pull the blood
to the stomach and not the head and I get some relief, but I might be
seeing pink elephants here....ya know, I've been dealing with this for so long
I don't know whats real....for sure the doctors althougth they try, DONT REALLY KNOW, they know how to bill the insurance.......thank you for the
sleeping upright tip, I'll try it tonight...and since I have no internet at home,
I'll check in here tomorrow for any response. If ya know anyone who will
talk to me let me know... I can't send any private emails here yet but I'll
give out my number to anyone who can help support me...do ya think my ex-wife could have caused this, :eek: I live in chicago and am an engineer
at NBC_TV.




Quote:

Originally Posted by Burntmarshmallow (Post 234124)
I've been doing the no sleep thing for years half because of my own t.n. and half cus my hub snores soooooo dang loudly and refuses to use his c-pap machine, that I cant sleep even if I begged my God. I find exercise of some type to help and a boring book or chill music. chill as in soft relaxing.
what type of meds are you on? have you asked you doc or neuro if a sleep aid would help you? have you tryed meditation or hot baths? I am lucky to get 2-3 hours sleep. but naps are good when I can catch one even a 20 min one is great. Wine a glass or 2 helps me relax and sometimes helps me feel sleepy. You just better keep on looking at that rope honey and do not let go !!!!!!! Has you doc suggested anything to help you? Like I have to sleep in my "happy chair" cus it is the only comfortable thing , I do not have to lay all the way back or anything... and breathing exercises .
I surely wish I had controll over the sand man ... I would send him directly to your place a.s.a.p. :hug:
I hope something I mentioned helps you captures a pillow full of ZZZZ's
there is chat rooms here too and if you cant sleep pop in and chat some of us are so boring we can put ya to sleep. :wink:
I will pray you get the much needed rest and sleep you need soon.
Peace
BMW


Burntmarshmallow 03-11-2008 12:41 AM

ha ha its like almost 2 am here BMW isnt sleeping just thought id pop in and see if you was around. feel free to message me any time here.;). the mods dont hold you to long at all when you first join .
yeah I here you on the docotr bills. so you think blood flow has something to do with it? how about a hot/warm cloth on the area? or ice pack or a nerve block? you didnt say what if any meds your on...
but i know you mostly need....
PEACE with rest and sleep on top.
BMW

p.s. rocket just went up to cloudy for a visual but the audio loud and rumbling . I am about 20 mins from space center .


All times are GMT -5. The time now is 11:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.