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-   -   MG and Desert Storm (https://www.neurotalk.org/myasthenia-gravis/41477-mg-desert-storm.html)

GI6607 03-17-2008 06:10 PM

MG and Desert Storm
 
Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.

Jomar 03-17-2008 06:24 PM

I did a Google search of - "wind plume of the Sarin Gas explosion in Iraq in 1991"
here's results of that-
http://www.google.com/search?hl=en&c...91&btnG=Search

and "organophosphates" results-
http://www.google.com/search?q=organ...ient=firefox-a

ap750 08-24-2010 01:40 PM

Myasthenia gravis
 
I was wondering were still checking this site.




Quote:

Originally Posted by GI6607 (Post 239051)
Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.


Annie59 08-31-2010 03:52 PM

I just ran across the research that was done at Mayo Clinic on the chemicals involved in Gulf War Syndrome. I found it interesting that tho one of the drug isnt supposed to cross into the brain on the drugs did seem to cause that to happen with they were both involved. They tested the mestinon and the pyrethryn (not spelled right but its the bug repellant) that was on the uniforms. Sounds like they dont play well together.

Couple days after reading it it occurred to me that troops on mestinon could be more subject to stress and therefore more easily PSTD because mestinon heightens nervous system. I have struggled with feeling like I'd had coffee and when on it didnt use caffiene at all. Couldnt as it would make me very hyper. The research on this I saw was done on mice and the mice all had increase startle response when given mestinon. Stress of course is so hard on ones immune system so that would set people up for a lot of the autoimmune diseases.

I myself know of another soldier that has MG.

Annie59

Quote:

Originally Posted by GI6607 (Post 239051)
Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.


mrsD 08-31-2010 04:05 PM

There are some new posts on the net about Gulf War Syndrome, linking it to the Anthrax vaccines given to the soldiers.

This vaccine back then was experimental, and had squalene in it.
This adjuvant has shown autoimmune damage in animals and is still banned by the FDA here for that reason. (But the military is exempt).

A small number of soldiers were vaccinated and at the last moment were not deployed to Iraq then, but stayed in US. They also developed the Syndrome!

While this is still controversial...I tend to think it is a vaccine autoimmune stimulated disorder.

You can search this and find many hits on this subject like this:
http://www.autoimmune.com/GWSGen.html

Vaccines are NOT safe as we all think. Some of the H1N1 allowed into the US last fall (because we didn't have enough of non-squalene type) had this adjuvant in them.

There are some videos on YouTube with reputable doctors explaining how squalene causes autoimmune disease when INJECTED into the body.

Annie59 08-31-2010 06:45 PM

Boy this is good to know. I never heard of this. My lung doc has been very pointed about me needing to have flu vaccines after this last season. I am not comfortable with vaccines. So many questions and I am chemically sensitive to begin with. Thanks so much Mrs D.

Annie59

AnnieB3 09-02-2010 04:32 PM

ap750, I wish GI6607 were still around but hasn't been on for a while.

I read that info too, Mrs. D., about the soldiers who didn't even make it over to Iraq and got sick. They get some nasty vaccines when they enlist. And I "love" the bait and switch tactics when the talk about the lesser "evil" of mercury and thimerosal in vaccines yet completely ignore squalene.

Annie59, Mestinon doesn't "heighten" the immune system. Did your doctor tell you that? What it does is to inhibit an enzyme in our body called acetylcholinesterase, whose job it is to "eat up" acetylcholine. That way, we can keep more acetylcholine in our neuromuscular junction longer and we can use more. Mestinon may, in fact, suppress the humoral immune system that produces antibodies. I wanted to clarify that for you. Also, the caffeine in coffee does the same thing as Mestinon does. It inhibits that enzyme too. So caffeine may help make muscles stronger or make them weaker if you get too much of it.

So many things happened to soldiers during the Gulf War. The vaccines, the sarin gas, taking Mestinon, being exposed to both permethrin and organophosphates, having diet soda sit out in 100+ weather when aspartame goes toxic above 86 degrees . . . so much didn't go well for them.

I know of someone who had a pneumovax shot and had their immune system go into overdrive (again, probably the squalene), cause nervous system damage and cause their left arm/hand not to function for months.

Deciding to have a vaccine or any other drug is a personal decision. You should always do research before putting anything into your body! ;) Those in the Armed Services weren't really given a choice.

Annie

GI6607 10-19-2010 04:28 PM

MG and Desert Storm
 
Here I am. I haven't been on for awhile but some things have happened. As I thought was coming quite awhile ago, my young wife divorced me after 22 years of marriage. She said I was not the same guy she married and was impossible to live with. After three and a half years, the Veterans Administration finally accepted my claim that MG was service related. They granted me 30% disability for the organophosphate exposure in the Gulf that they agreed was the catalyst for my myasthenia gravis. I am now taking Imuran instead of Cellcept but am still taking the Mestinon. Finally, I now have to wear a brace on one of my legs. Still kicking. Still here. Hope all are doing well...







Quote:

Originally Posted by AnnieB3 (Post 691253)
ap750, I wish GI6607 were still around but hasn't been on for a while.

I read that info too, Mrs. D., about the soldiers who didn't even make it over to Iraq and got sick. They get some nasty vaccines when they enlist. And I "love" the bait and switch tactics when the talk about the lesser "evil" of mercury and thimerosal in vaccines yet completely ignore squalene.

Annie59, Mestinon doesn't "heighten" the immune system. Did your doctor tell you that? What it does is to inhibit an enzyme in our body called acetylcholinesterase, whose job it is to "eat up" acetylcholine. That way, we can keep more acetylcholine in our neuromuscular junction longer and we can use more. Mestinon may, in fact, suppress the humoral immune system that produces antibodies. I wanted to clarify that for you. Also, the caffeine in coffee does the same thing as Mestinon does. It inhibits that enzyme too. So caffeine may help make muscles stronger or make them weaker if you get too much of it.

So many things happened to soldiers during the Gulf War. The vaccines, the sarin gas, taking Mestinon, being exposed to both permethrin and organophosphates, having diet soda sit out in 100+ weather when aspartame goes toxic above 86 degrees . . . so much didn't go well for them.

I know of someone who had a pneumovax shot and had their immune system go into overdrive (again, probably the squalene), cause nervous system damage and cause their left arm/hand not to function for months.

Deciding to have a vaccine or any other drug is a personal decision. You should always do research before putting anything into your body! ;) Those in the Armed Services weren't really given a choice.

Annie


SandyC 10-19-2010 04:37 PM

Jim's records indicate biochemical exposure which is related to his diagnosis of MS. It is amazing how many military are developing MS or MG. Jim spent time in Jordan for desert training before the Gulf War started. This was when Iraq and Iran were going at it. The shots they had to take were crazy! He was dx'd with MS and medically discharged before the war broke out. Fastest medical discharge.

What I hope is with all these diagnosis is they come closer to finding out what may be triggering the disease and find a cure faster.

GI6607 10-19-2010 04:40 PM

VA Disability
 
Does Jim receive VA disability? How is he coping?








Quote:

Originally Posted by SandyC (Post 706506)
Jim's records indicate biochemical exposure which is related to his diagnosis of MS. It is amazing how many military are developing MS or MG. Jim spent time in Jordan for desert training before the Gulf War started. This was when Iraq and Iran were going at it. The shots they had to take were crazy! He was dx'd with MS and medically discharged before the war broke out. Fastest medical discharge.

What I hope is with all these diagnosis is they come closer to finding out what may be triggering the disease and find a cure faster.



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