neurology visit
 

I saw my MS specialist yesterday and now I am right back in my dark hole:eek:

It takes me an hour to get there and I always feel like "Dead Man Walking" on the way there.

I don't ever get "Your doing great". Yesterday during the visit we of course did some testing. Hands out in front close your eyes etc. balance is getting worse. Gait is getting worse and now I have developed tremors.

He seems to think I am progressing but wants to take the wait and see for a little bit longer. I do take copaxone everyday and I seem to think if this makes any sense that I feel better Inside?!

Anyway, I again am down in the dumps and I hate this feeling. I guess going to the neurologist is a reality check for me.

"This is never going to go away"!!! Man this sucks.

Thanks for listening to me whine. Can I get some cheese now:(:(:o

What kind of cheese? Let me see what I have.:D

I am so sorry that you are down in the dumps and things didn't go well for you yesterday. The good news is that you have all of us to whine and complain to and we understand and are here for you.

Sending prayers up for you and a big cyber:hug:.

:hug: Sorry to hear that the neuro appointment was a reality check. I know I hate appointments like that, so understand your need to vent. :hug:

BTW, I have some cheddar if you would like. :D

Thanks Fin and TK I hate to vent but sometimes it kinda feels good to blurt it out. Can I have a slice of each please:p:hug:

Aw nuts, Bethie, I hate hearing this! You know I'm right there with you and it's just plain hard to get a grip on all the different ways this carp impacts us. Let's not lose all hope, something has to give one of these days. :hug:

Just remind yourself that you're the same person today as you were yesterday. Regardless of what you learned during that doctor's visit, it doesn't change anything about you.:hug:

Greta I know you are right when you say it doesn't change who I am it just such a pain in the rump when you try to stay positive and live as normally as whatever normal is and then Smack right upside the haid with reality.

I only think like this right after a neuro appt. It's weird. Its like Man....I have a disease......This sucks.......It's never going to go away....Am I always going to walk like I have a pole up my rump.....I feel cheated......I feel like carp....It's not fair! Why do I have to go through this! yada yada yada.

I will be back to my ole "I don't give a carp" self tomorrow!

Please stand by........I am just like Michigan Weather. If you don't like it, wait 5 minutes it will be different:D

I'm so sorry Beth - this disease does bite the big one.....seems like one day I'm doing good and then wham the fatigue and dizziness hits. Visits to the Neuro affect me like this, too. I guess hearing it confirmed from a "professional" just sorta makes it more real. I hate trying to explain symptoms to someone who's never experienced them. I almost feel like to have to apologize - but for what I don't know. I just want to say "look, this is what I'm feeling whether you can relate to it or not is not my problem. Just give me something to allieviate the symptoms."

I hope you feel better...wish I could offer you some words of wisdom but I don't have any! :hug:

AMN I know you can relate doggone it and herekitty you are so right about biting the big one (I love that term LOL)

Its so good to be able to come on here and crab away at things. Its almost cleansing.

You guys are great and I really appreciate your support:grouphug:

sometimes beth life do sucketh mucheth, it does :hug: hang in there you are not alone, you have friends on here who care for you and by the way pretty awesome signature picture ya got there

try not to let it get the best of you, we would rather share the best of you