I'm new here...any TM patients?
 

Hello! I'm fairly new here. I joined 3 days ago & can't get anything done but reading. This site is so informative.

I have Transverse Myelitis, spina bifida, & ddd. I hurt from the neck down to the tailbone along with migraines. Was wondering if anyone else on here has TM to see what symptoms they have & what route you are taking for relief?

Thanks in advance! :)

Hello and welcome.

I was first dx'd with TM and then a year later MS. The only treatment I ever had for TM was IV steroids.

Since then MS treatments. I still have lingering sx's from the TM which cause issues from the neck down.

Hi Kellijo! (have a cousin with that name)

I have had TM for 11 years & when I was diagnosed, they said it was very unlikely for another attack. Well, 3 years later & I had another spell. Then they thought I has MS. After the MRI, it was definite that TM had left it's mark again. Had a spinal tap to Rule out MS.

Do you have permanent scar tissue on the spinal cord & do you experience any pain from it?

BTW-nice to meet you & thanks for responding.:)

TM resources
 

Try this website for helpful information about TM:

www.myelitis.org

Johns Hopkins in Baltimore is the leader in TM research.

Both plasmapharesis and IVIG have been used for treatment of acute TM attacks. It can mimic MS although the MRI should look different if it is MS (you will see plaques).

There is a non-traumatic SCI forum at www.carecure.org you might want to check out for others with TM.