NeuroTalk Support Groups - Lyme and Fibro

Hi everyone. My name is Kristin. I am 34 on April 8th '08 anyway. About 3 years ago, I woke up with this excruitiating pain in my legs. Dr's said it was Sciatica and sent me on my way. Well, after 3 years, I was diagnosed with Lyme and Fibromyalgia. I have NO energy, I don't sleep at night but nap all day getting NOTHING done. I have never missed a period in 17 years (except when pregnant but my tubes are tied) and now I haven't had one in 3 mths. The pain in my legs is unbearable. It hurts the worst sitting. The only way to describe it is....when you sit Indian Style on cold concrete, that gnawing pain you get in your butt and legs. But that goes away when you get up and walk. Mine NEVER goes away. Now my arms and hands are starting. I used to have a GREAT memory. I could remember things from being 3 years old. Now I can't remember to pay simple bills on time that I've paid on time or early for over 16 years. I was the ultimate mom, I played with my kids until they passed out, now I lay around nonstop. I get these horrific hot flashes. I hate them the worst. I've gotten so mad at those that I've ripped shirts off in front of my kids and I feel awful showing them that. At 10, 9, and 8, they know what Lyme and Chronic Pain is. They will make excuses for how I feel because they know I can barely walk some days, and I HATE THAT!!! On April 9th, I am going to a pain managment Dr. My husband sees this Dr from a car accident. I am so hopeful to get some of this pain under control. I won't lie I have taken some of my husbands meds just to get out of bed. I can't tell the Dr I got it from him but I am going to tell the Dr I got it from my mom who was also in Pain Mgment but died a few mths ago. That way I can be honest about what helps me. I don't want to start at too low a dose and suffer even longer. I had to wait 6 weeks for this appt. I don't think the Lyme is dead though. My PCP put me on ONE antibiotic for 2 weeks. I still feel just as bad if not worse. I know that the damage the Lyme has done will always be there but I think it's still doing damage because it's not gone. My question is this...for people on Narcotic therapy...what meds have helped you for Lyme. also what antibiotics did you take and for how long? I know I had the Lyme for at least 3 years. I lived in a farm and can remember the day it started. I find it hard to believe anything is causing my problems considering I have EVERY symptom if Lyme. I never thought a tick could do so much damage. I do not hate spiders or even snakes but I've always hated ticks and now I know why...LOL :rolleyes: This is MY story. I would love to get any responses from anyone but especially from anyone who can relate, give me info, or just talk w/ me about my pain! My husband and sis in law suffer from chronic pain (him- accident, her-Lupus) but neither know MY pain since they don't suffer from Lyme. We are all helpful and supportive of one another but I feel that all 3 of us need support from someone with OUR symptoms. Maybe we can get more help this way. God Bless any of you who suffer. I say a prayer every night for anyone with chronic pain to find relief. Know that even though I don't know you, I wish you relief and happiness. I look forward to talking with you. Take care,Kristin :grouphug: