NeuroTalk Support Groups - Welcome Denny11737

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Reply to Parkie Patty,
I too have been in the Clinical Trials and I think mine was even longer than 3 years its seems, but I most certainly can imagine what you are going through. I have a 3 month supply that I just begining to start on, but sooner or later I am sure I will have to switch over Mirapex. I just found this forum a few minutes ago so I am new.
Denny from Mansfield, Texas

Quote:

Originally Posted by Parkie Patty (Post 256779)

Hi all---

I'm new to this site. Glad I found it. :D I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.:mad:

Hi Denny

We didn't want you to get lost in the shuffle of another new member's intro thread so I have copied your post to your own new thread.

Welcome to Neurotalk!

Hi Denny,

I am sure sorry to read about these problems with the neupro patch. I hope they soon answer some of those questions and come up with a solution.

IN the meantime welcome and :hug:

http://i265.photobucket.com/albums/i...omes/Hello.gif

Hello Denny and welcome to NeuroTalk.

I hope you've had a look around at the topics that interest you, but if there's anything we can help you with, please don't hesitate to ask.

Hi Denny :Wave-Hello: and welcome to NT.

Hi Denny! :Wave-Hello: Welcome to NeuroTalk!

I see that you've already found the PD forum, so please have a look around and feel free to join in anywhere. :)

Hello Denny and Welcome to NeuroTalk. Glad you found us, so please make yourself at home.

http://dl8.glitter-graphics.net/pub/...jtpif35jly.gif

Hello and welcome to Neurotalk - you will find many great people here!!

If you need anything just ask - I will try and help you if I can

Thanks and i'm looking forward to seeing you around the forum soon

Best wishes to you,

Alison

Hi my name Danny collins and i had a operation on my shoulder 2 years
ago and it has gotten worse.now the pain has went down my arm and it
burn like hell i went to a pain center and explain my symtoms.I was told
to go to web MD that i had RSDS now i want another opinion,

Hello dcollin156,
I made a copy of your post and started a new thread to welcome you, here is the link to it.
http://neurotalk.psychcentral.com/sh...ad.php?t=51588