6 years, no relief from TN
 

Hi everyone,

I've been suffering for over 6 years with TN, nothing has helped. They have tried many types of pills and nothing has brought any relief at all. Unfortunately I've lost me job while they tried all the pills and no longer have any insurance. Now I can't get any help at all. I've tried applying for assistance through SSI and also from medicare but they both turned me down telling me that TN was not a disability. I'm guessing they don't have any idea of what TN is.

My attacks started on the right side of my face about 6 years ago. I had an attack about every 3 months. Then they went away for about 6 months and now they are on the left side of my face. The attacks are now hitting me about every 10 days and lst for about 4-6 days. I also have a non-stop ringing in my ears.

To make matters worse, I am also getting a lot of pain in my arms, legs and hands. It is a similar pain to the TN, although not quite as intense. I'm just glad I found this place with others that understand what I am going through.

Jerry

good moring Jerry.I see you found your way to the forum here . welcome to neuro talk :)... we chated last night in the chats so I got to know you a little bit and visa versa. I am going to gather the info and send it to you in a personal message later today.
if I recall you are in ohio? I will look for info in that area of country I think I have a list of docs and one is near you. You have found a great place here at neuro talk and we are all glad you found your way here. neuro has many many caring people and its filled with helpful info . Any questions or things you want to talk about just post we are all here for you and for eachother. you can also message me any time. ;)
Low pain wishes and I will be talking with you soon.
Peace BMW
p.s. here is a link to our p.n. forum you may want to post about your other symptoms in there as you mentioned other areas of pain other then face and head... the link is...
http://neurotalk.psychcentral.com/forum20.html
I am not a doc but maybe others in that forum can help you too.

mmmkay I sent you info message so check your box here ;)
Peace
BMW

Thanks BMW,

I'm doing as much research as I can to find out whats all wrong with me. I'm so glad I found this place and all the friendly helpful people.

Jerry

Jerry I know Today is "the hearing " I am sure with out doubt you are jammed packed over flowing with the stress and that makes the pain a bit more ugly. Know that we are praying things go well and work in your favor :grouphug:. It is people who do not understand that really tick ya off but we know it is a fact if they had to deal with this for just a half a day...
Please when you get a chance let us know how today went. :hug:
I will be thinking of you and wondering and pulling for you all day long !
Peace
BMW

Thanks BMW,

Its not a hearing, just first meeting with the SS attorney. I am totally calm as I know I am in the right. I've done my homework and have a pile of info to hand her. I am 100% prepared and even my TN is working with me, I am having a medium flareup that I know will be much worse by the time I get to her office. I was hoping it would be bad when I saw her so she could see the true pain in my face. I was worried that I'd go and see her and be feeling fine, I want her to see how I am effected and not just tell her "well this is one of my good days". This will be one of the very few days that I'll be glad to be in pain!

I honestly believe that she will get my denial reversed once she has all the facts. From what I've been told she is the best SS attorney in the area. Friends of mine have used her and they all highly recommend her.


Jerry

positive thinking is the best thing Jerry! I am with you all the way!
Chat with you soon but keeping you in my thoughts ...positive ones :) :grouphug:
Peace
BMW

Jerry I hope your apt. went well and that .. well now you dont really need the pain with you so I hope it is gone or at least at a lower bearable level.
I hope you are geting a good start on building a winning case for yourself .
when you can let us know how you are. :grouphug:
Peace
BMW

Hi BMW,

The meeting with the attorney went great. Now its just a matter of time. The past few days have been pretty good, low levels of pain and I've been busy building a web site. I figure its good to have something to keep me busy and help keep my mind off things. Plus it will bring in a bit of income that I can really use.

Jerry

Jerry I LOVE YOUR ATTITUDE!! Stay busy and I hope the money pours in for you. am so glad your apt. went well and I hope so much you are on your way to a pain controlled happy ending. Remeber when ever you need us we are here always. take care of you and your lady.
Peace
BMW