to take tysabri or not?
 

i previously took avonex for seven years, switched to copazone, found out i was allergic, and now after a new lesion was found my doctor has suggested tysabri, i read the company line on the brochure, but i need an unvarnished approach to decide. can anyone help?

Hi, welcome to the group.
 

I don't know anything about the med you are talking about but I wanted to welcome you to the forum.

I would do a lot of reading on it and study the side effects. I am a big advocate of reading up on meds before a person takes them. They are a lot of the reason I am in the shape I am in today by not knowing enough about them. I also lost my husband 18 months ago and I believe it was brought on by the med Noravasc for high blood pressure.

Drs. get kickbacks and gifts for pushing these meds. Most don't care what they do otherwise to a person.

I know we have to take meds but we need to know what they can do to us before we take them so we can associate the side effect or problem to the med.

Ada

thanks
 

thanks i always research before deciding

Hi Debbie! :Wave-Hello: Welcome to NeuroTalk!

Here's a link to our MS forum where the folks will be able to talk Ty with you, many are on it and seem to be thriving with it. :)

http://neurotalk.psychcentral.com/forumdisplay.php?f=17

Hi Debbie and Welcome! Go to that other thread as suggested, but just to let you know, I started Ty this past week. It ended up not being much more money than the Rebif I was on, and it doesn't make me fatigued!

I also have been on Avonex, but had more lesions appear after being on it for a year. Rebif stopped the lesions, but made me tired and itchy.

Good luck on deciding!

Brenda

Hi Debbie. Welcome from me as well.

I'm sorry to hear that you've joined the rank & file of us MSers, but they do say that every cloud does indeed have a silver lining. What a mixed bunch of people you will find on here, & to some degree a trade off in health is almost worth it because these people will quickly become your friends!

I too was allergic to the Interferons and Copaxone, so my neuro has suggested chemo for me in the future if it becomes necessary.

Tysabri use is very new and very limited here in Australia, so I don't actually have that option at the moment.

I'll look forward to reading more about your progress Debbie, over in the MS forum.

Hi Debbie, welcome to Neurotalk

We have a very caring and supportive MS Community here. As one who has MS, I suggest you check it out. There is a Tysbari thread where people who are on Ty post about their experiences and ask questions about the drug.

Not everyone knows everything about it, but you can get first hand experience from those who are currently taking the drug. Nothing like first hand experience!

Nice to meet you. Hope to see you around the Stumble Inn and the MS Forum! :D