I have grave's disease
 

I have had grave's disease for 4 yrs now and I have been taking methimazole. I have had no real problems with that med, but I never went into remission either.. My Dr. has started me on a new pill today, propylthiouracil, and I was just wondering if anyone here has been on this drug?? And how u did on it, how it made u feel?

Hi Kimberlyren and welcome to NeuroTalk

i know some of our members have info on Graves and so hopefully you will get replies here soon.
You could also try asking your question in our medications forum http://neurotalk.psychcentral.com/forum72.html

all the best
Cheri

I have a niece who was dx with Graves about a year ago. She is in her 20's. I know she has been taking some kind of chemo pills. But I'm not sure what. So though I'm not much help here... I want to say you are in my thoughts and prayers.:smileypray::hug:

Hi,
I had a really bad reaction to it, but that doesn't mean you will. I had a paradoxal reaction- it drove my thyroid levels up. Ended up having to drink radio-iodine to kill my thyroid off. I knew somebody else that did well on it and felt quite "normal". Good luck.

Kimberly At least you got diagnosed?
 

And they are trying to do something about it all. It's frustrating!
I've the opposite problem.. 'Hashimoto's' where they thyroid has pretty much died...and have to take Synthroid to replace what I'm not getting.
I can only suggest that you check out the web site http://thyroid.about.com
I've actually found lots of good info and resources there dealing with thyroid issues.
As for that specific medication? Web up it's name and add 'prescribing information' - that way you will get the complete info that sometimes comes in the miniscule print in a 'puter format that can be actually read! Should you have any odd things occur as possible side effects, call the pharmaceutical company's 800 number and while it may take about 10-20 minutes on hold, then about 20+ minutes of questions about YOU...you can find out if you should be worried or not. I say this because many docs don't really read all that fine print themselves.
Some of the s/e's that drive us up or down walls docs don't register, plain and simple?
Also keep in mind that any other meds you may take for other issues can affect how well you process this med. The best place to ask about this is the pharm co.... I sure hope this helps and I truly hope your new med helps! Goodness knows relief is where and when we can find/get it! - j

I just noticed that you were new to NeuroTalk Kimberly so I wanted to welcome you to the site.

It's good to know that you found your way to the Graves Site, but do have a look around the others as well. You may find some others forums that interest you as well.

well thank u
 

I just wanted to say thank you to everyone for reading this and trying to help...I go to c a surgeon tomorrow. My thyriod is so large that it is pushing to the back of my throat...I am really nervous that they are going to want to cut my thyriod out...

Hi Kimberly and welcome to NT!

It was fun talking with you on Chat. Hope to see you again sometime.

Good luck with the Dr. appt. tomorrow. I hope whatever is decided will bring you some relief and peace of mind. :hug:

hi
 

hi. Unfortunately I am not able to help you cause I was diagnosed with graves yesterday....Just wanted to say hi and hope you will react good to your new medicine.


Meline

hey
 

Are you seeing and endo yet? The meds didnt work for me,..I am now off everything and am waiting to burn my thyriod out.