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Olhipie having an MS day...bad day...

Sorry so long...Need/Support, some help from all you fellow MSers…my Olhipie is having a very bad day. I think most of his days are bad he just won’t admit it. Yesterday he didn’t function very well and even eating tired him. he fell asleep on the couch about 8:30is.

Today I just tried getting him up to shower and he was in the bathroom and was very confused…confusion is somewhat of a norm for him but this was more than the norm. He had rinsed his bed-bag out and had not put a plug in his catheter and when I got out of the shower he had the funnel to plug the cath with. He felt so bad and stupid. I asked the same question I always ask….did you do it on purpose, he said no. Then I told him that it wasn’t his fault. I told him that I wasn’t going to shower him because he was too weary. I put the bed bag back on him and put in back in back after I put clean under garments on him.

He felt so bad going back to bed. He told me he felt lazy…he beats himself up when he has a bad day and he needs to go back to bed. Everyday I get him up and dressed for the day and he follows me around all day. Before putting him to bed he said, I just don’t want anyone to think I’m lazy…I told him that anyone that knows and loves him will know he is having a bad day and be concerned because he isn’t at the helm.

So he is resting…I don’t know for how long…as far as I’m concerned he can rest all day…time for a chocolate shake…Dairy Queen here I come…

He needs to know that where he is with his MS right now…22 plus years…that there will be days spent doing nothing. I love him and don’t want him thinking so badly of himself. Some days he has a hard time dealing with his MS as if he had just been diagnosed...I love him so much...don't want him to feel bad!!:(

So sorry for what you are going through. I fear that I will have to become so dependent on my hubby. But he loves me as much as you love your hubby. You are both lucky that way. Thank goodness he does have you to depend on. You are wonderful with him and for him.

Now, my concern is for you to also take care of YOU. Be nice to yourself every chance you get. He wants it that way for you. you are in my thoughts and prayers!:hug:

Thank you so much...oh yes he always wants me to take care of me. :hug:

Such a stressful time for me...tomorrow I go to hospital to have my back injected...hope it does the job!!

Awww Tammy, come here... :hug:

You tell Craig that Jim sometimes stays in the bed if nothing is planned for us. He prefers to since it is much more comfortable for him and he gets the rest his body is needing. Our norm is one day in bed, one day out of bed. Today was an out of the bed day, but he's now soaking in the tub watching Two and a Half men. :D This not only helps Jim but gives me the little break I need to get things done around the house as well. So, tell Mr Craig that it helps you too.

Jim gets frustrated too if we plan something and always says he's sorry if he can't go. I tell him the same thing you tell Craig. :) :hug:

Quote:

Originally Posted by tamiloo (Post 274062)

Thank you so much...oh yes he always wants me to take care of me. :hug:

Such a stressful time for me...tomorrow I go to hospital to have my back injected...hope it does the job!!

I hope the injections help your back. In the past, I have had shots in the back. It's quite an ordeal to go through...sounds so simple. Good luck...hope it helps!:hug:

Tamiloo,

Just let Craig know that we all have those same feelings once in a while.

I hope that your hospital visit works out very well for you.:)

Enjoy that DQ visit first! It sounds reaaaallllly good right now!

-Vic

:hug: Tamiloo :hug: I know Olhipie realizes how lucky he is to have you. And I know how much you love him - it's very apparent just in the way you write about him.

It's always scary when things happen to our bodies that we have no control over. Whether it's MS or something else - it's scary.

Plus, being a man, I'm sure he doesn't want to appear weak or incapable. Judging by the recent posts from you two he's been a busy guy....I can tell you that if I tried to do all the things he does well, it just wouldn't be a very pretty sight, that's for sure!! He's got more energy than anyone I know!! So, he deserves a rest. And...he's nursing a sore rib so it's only right that he take it easy. Maybe it's just his body's way of telling him to s-l-o-w d-o-w-n for a day or two. :winky:

Hugs to you all for your caring!!!:grouphug::grouphug::grouphug::grouphug:

As for the injection, I had one once and it put me down hard...I have to get someone to drive us home from the hospital...any takers??? Twink????

Bummer, Craig! I'm right there with you, today is a crapper for me, too. Just wanted to do a single, simple thing and I only just got back up half an hour ago. Sometimes it's just too much for us.:(

Tammy, please plan on having someone drive you tomorrow, just in case! Neither you nor Craig need the stress of worrying about it all night. You're a good egg and I think Craig knows it.;)

Hey Craig there are days I dont get much done and hardly leave the bed either, and tammy you are problaby right, he isnt telling you how bad it is on normal days, I dont tell deb how bad it is sometimes either, curious did you call the neuro?

Craig hang in there and just rest, take it easy, and dont go over how you didnt make it over snake river canyon and that the parachut deployed too early, just rest easy, personally i find a strawberry shake made with fresh strawberries taste ten times better when I relax in bed:eek:

hang in there tammy:hug::hug::hug::hug:, i can only imagine what you are going through, I know i see things in debs eyes every so often, it isnt hard to spot concern and fear:hug::hug::hug: