Optic Neuritis Blah
 

I have been having really bad episodes here lately with vision coming and going. Being bad blurry or sharp pains behind my eyes. It sucks because it is interfering with work. When will it get better? I know there is no answer for that but it has been almost 9mths and my eyes have only got worse.It comes and goes and is so driving me crazy. I don't want it to interfere with my job as I need it but it is getting bad. I have had two treatments of IV steroids in the last 4mths.I just wanted to vent.

I feel for you. I've had ON in both eyes many times over the past years, but never both eyes at once thank goodness.

Mine always starts with severe eye pain, but doen't always proceed to blurry vision. I've not noticed any differences with colour vision during my flares either, but the ON has always been validated by a Neuro or an Opthalmo.

Sometimes I think that every single MSer has a different strain of the condition. We're all so very different!

ON does indeed suck!! I hope yours goes away soon! Or at least lessens up and gives you a break!

At first it was just the right eye then it just kept getting worse any reflective glare is horrible.Although not to mention I went to my regular eye doctor on 3 different occasions for the same eye problem in my right eye.He said it was severely dry eyes.Couples or more weeks pass it got better.Would happen again and he said the same thing.On the 3rd visit he said I really think you should get a MRI.Then I got the MRI went to
a neurologist and she sent me to the eye specialist.He said that steroids was probably not effective since several weeks had passed.
Several months later my left eye started bothering me so they gave me the 1st thing of steroids.Then I had a MS flare up and my eyes still bothering me so they gave me a 2nd thing of steroids. But now I can't drive because reflective glare and also scared my eyes will completely go and I definitely wouldn't want to put others at risk. Well I ask my Opthalmo and he said he fully anticipates the steroids will help. I am in the process of looking for another Opthalmo because
I do not really care for this guy and neither does my husband. I just want to be able to see the bad thing is I count money at my work alot and it scares me I will give to much back or not enough.

I never did steroids for my optic neuritis. (developed it in my left eye in August 06) But, in July of 2007 I had bad vertigo, and my regular doctor gave me oral prednisone for that. I probably should have had IV steroids for that instead. Since oral prednisone actually can make it so that you're more susceptible to repeated cases of ON, and I guess it doesnt matter when you had the ON, oral prednisone is bad for people who've had ON. (I found out about the prednisone AFTER I'd finished that prescription... Opps!)

I had another experience with ON in february of this year, and it's still driving me nuts now. It hasnt caused any huge blind spots, but I dont think all of the information going into my right eye is actually making it past the optic nerve. Things just look weird sometimes thru that eye.


This past week I've been having more optic nerve pain and things have been looking dim thru my right eye, and the color vision is a bit...weird.

That's the part I hate, is when it messes with my color vision. I'm a crocheter and a sometimes knitter, and I love color and yarn shopping. So, whenever my color vision is all wonky, I get a little depressed about the way colors look to me. Plus, it's kind of strange to go yarn shopping and having to ask total strangers if the yarn colors go together. I dont always trust my eyes anymore.

Ugghh!! I do know how you feel! Sometimes my right eye would act up, sometimes my left. The worst bout I'd ever had lasted about a month probably two years ago. Now my right eye does give me some trouble but only when I'm overtired or at the computer screen too long! :)