NeuroTalk Support Groups - Terrible Flare

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Terrible Flare (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/46197-terrible-flare.html)

Hi everyone,
I've been thinking about you all and wondering how you are doing but haven't been able to sit down at the computer. I am having a terrible flare up in the sacro area so I've spent most of the last 2 1/2 weeks in lying down. After sucking up the pain as much as I could & trying to do the necessary things in life to get by I finally broke down today and spent the afternoon in bed crying. I just can't take this pain anymore. It feels like someone has a knife in my sacro area and is twisting it. I can't get in to my PM for an injection for another week and a half and won't go through the ER thing again. So I turned to the "legal" drug and had a couple of glasses of wine. Remember reading somewhere that alcohol is a vasodilator. Anyway, I slept for a couple of hours and am sitting at the computer which I couldn't do earlier today. I am just so sick and tired of how the medical community treats those of us with chronic pain - like we're drug seekers or crazy or just trying to get attention or whatever. And those people that are so anti-drug. If they had to live with my pain for a month they would be begging for drugs.
Anyways, this pain flare has just totally worn me down physically and mentally.
Linmarie
:grouphug:

So sorry for your awful pain, Linmarie. Hope you get some relief very soon. :hug:

I PM'ed you.

I do hope you are feeling better. I guess we have to find any way we can to help with our pain. Drinks help relax so maybe it relaxed you enough to help the pain ease up.

I hope you continue to feel better. I do know why you feel like you do about the ER. My Dr. finally told me not to go back at all. I finally had to go in an ambulance in April of last year and laid there for 7 hours without seeing a Dr. I walked out around 11 with their gown on. I wouldn't even take the time to change. I kind of wonder if they thought I hadn't over medicated on my meds and just wanted to give me time to throw them all up. I hadn't taken any that day.

We all have stories about ER's don't we?

Feel better soon.
Ada

Awwwwwwwww.. LinMarie,
I feel so bad to hear that you stayed in bed just crying away!! Yes, this pain is awful!! I feel so bad and I mean that from the bottom of my heart. I know what you mean by people that are so "Anti drug and if they had to live with this pain, they would be begging for them". So far, my family feels very badly with what I have to endure. My oldest sister told me how her sister-in law who has RSD is anti drug and she is sticking the pain out!! I told my sister, she must be "Super woman" or something to not want any kind of pain med. for what most of us have to feel! Well, sweetie, your in my prayers and I am hoping that a tad bit of your "legal drug" helps you get through this. I heard the same thing about wine being a vasodilator too. Are you taking any thing for this pain at all? If not, you should be Linmarie! I am thankful to have a Dr. who will give me pain meds and he will also let me be in, what I have to say, need and such. Well, please know that I care and am always here for you. ~Love, Desi

I hope you feel much better very soon.

Hi am sorry you are not feeling well, but you are absolutely right. I hate having this much pain and being made to feel like a drug addict every month.

Hi everyone,

Thank you for your support. I haven't been on the computer the last few days because it just hurt too much to sit with the worst pain in the sacro area. Thanks for your prayers, too. The pain is starting to ease up a bit. I guess it's a bad muscle spasm in the area. Last time it got really bad there my PM did a trigger point injection & it helped. When I asked how he knew whether the pain was muscle originated versus nerve originated he told me an injection in the muscle would relieve it if it was muscle versus an injection in the joint if it was nerve originated. Anyways, he injected the muscle last time & it helped. I have an appointment next Thursday for an injection but am hoping I won't need it by then. It's been three weeks now for this flare-up. I called his office last Tuesday (in tears) & asked if I could get in for a couple of minutes for an injection but he was too busy with new patients all last week. I used to think he was a really good PM but now it seems like he his too busy trying to build up his practice and get a partner to take care of his old patients. Anyways, the meds I am on on pretty lightweight. I have been using a lidoderm patch that seems to help a little.
Ada, I haven't used the PM feature here yet but will try. Thank you.
I know some of you here have mentioned the fentynal patch (Desi, maybe that was you?). I'm wondering about it and whether you put it on the area that has the most pain. How does it work? I'm thinking about asking for it next week.
Anyways, thanks again for your support. I didn't sleep alot last night but feel like I need to tackle a few chores today since I've neglected them for so long. How do we manage to get life's little necessities done when we are in so much pain & so tired? Everything seems to be such an effort anymore.
You all are the greatest for using your effort to support us when we need it.
Linmarie
:grouphug:

Quote:

Originally Posted by Linmarie (Post 283762)

Im so sorry to hear that your feeling badly. Know that you are not alone in your feelings. We are all with you my friend,
Gentle hugs to you my friend~~

Linmarie, about the fentanyl patch...

Quote:

Originally Posted by Linmarie (Post 285910)

Hi Linmarie! ok about the fentanyl patch, yes that was me who mentioned it. ok you said your wondering if you put it on the area that has the most pain, no, you don't. It works by putting it anywhere flat on your body, such as the chest, upper arm, back. It go's into your blood stream slowly.This helps me so much, as I have been on vicodin ES, morphine (Up to 60 mg) those didn't help so my old pain doctor started me off with 25, then 50, then last week 100mch of the patch.(This is the highest this patch go's) You have to be opiod-tolerant(I was on the vicodin ES's for a long time, then the morphine which was started at a low dose at first,so there was no problem for my doc. putting me on this. You have to be at least taking these opiod meds for at least 3 weeks or so. Anyway, there is a phamplet that comes along with the patchs. (They are very, very expensive and I thank God I have a co pay to pay for these). You wear the patch continuously for 72 hours, and that each patch should be applied to a different skin site after removal of the previous transdermal patch. Hope this helps Linmarie. :)