NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Epilepsy (https://www.neurotalk.org/epilepsy/)

- - Hi everyone. (https://www.neurotalk.org/epilepsy/46468-hi.html)

I am new here. My 30 year old daughter has been suffering from seizures for almost 16 months now. Theywere first diagnosed as panic attacks. Then they got bad and more frequent and we had all the testing done- MRI EEG and lab work and all came back clear. Now it looks like we may be heading back where we started. Sometimes these siezures last for 30 min. Sometimes she never fully comes out of them and is in a state of confusion for hours/days. They used to happen when eating and I first thought maybe diabetes, but I've been everywhere and back with this. I would just LOVE to talk to someone who has anything similar to this in their lives.

Hi deniss,
Welcome to the forum! It's sound like your daughter may be having status seizures especially if she is out of it for 30 min. this type of seizure can be very dangerous. My advice to you is to get her to an Epilepsy Center to see an Epileptologist -Dr. specializing in epilepsy. You can usually find an Epilepsy Center at a University hospital.
Your daughter should have a SPECT scan, PET scan, and a CT scan. these tests will show what the eeg and MRI didn't show unless she has brain damage to deep for the tests to pick up. This happened with me when I had a e.e.g. done.
You mentioned that your daughter has seizures while eating breakfast. If she is eating to much starch food, carbohydrates, and sweets it can trigger seizures or it may just be a pattern of the time of day she has any seizures. My advice to you is to get a calendar and write down the time she has a seizure along with a discription of the seizure. Also have her write on the calendar when she starts and stops her monthly cycle because hormones changing can sometimes trigger seizures for some women.
If I may ask does your daughter get enough sleep? Sometimes people with sleep disorders can have seizures and if the blood sugar is to low it can cause seizures. One thing I've learned to stay away from is anything with nutra sweet in it it has been proven that nutra sweet causes more electrical activity in the brain which can cause seizures for many people.
Check out these websites for more info.
http://www.emedicine.com/neuro/index.shtml#seizures
www.epilepsy.com
Here's wishing you and your daughter only the best. May God Bless You!

Sue

Hope this helps! And so sorry about your daughter!

Hello Deniss,

Is your daughter being seen by a Pediatric Neurologist
or Pediatric Epileptologist? If not I strongly recommend
that you see a Neurologist that specializes in Seizure
Disorders / Epilepsy or an Epileptologist (A Neurologist
that is an Epilepsy / Seizure Disorder Expert).

They can rule-out and make the exact diagnostics, and
you can always obtain a 2nd opinion. I'm a strong advocate
of 2nd opinions!

If you do not know of one, you can find one here:

FIND A DOCTOR - by the Epilepsy Foundation

Thanks to American Epilepsy Society for providing this
list of Neurologist & Epileptologists.

And another way of finding one is via this MAP:

Level 3/4 Epilepsy Centers - by National Association of Epilepsy Centers

This Epilepsy Centers have the best specialist(s) on site
typically, and Cleveland Clinics also have one of the best
Epilepsy care and they have branches all over the United
States as well and you can find your location via their
website as well - and they have Level 4 Centers too.

Cleveland Clinic Main Page

Hope these information above helps you out a lot!