Sympathetic nerve blocks
 

Does anyone have any experience with sympathetic nerve blocks? I have full body small fiber neuropathy and am schedule to get both upper and lower blocks next week.

I have to ask...what got you to...
 

that diagnosis? What other reports indicate just that and maybe something not auto-immune?
I actually considered such an approach after I'd had a solid CIDP onset? But could find very little on the subject regarding small fibres....Larger nerves and nerve channels, yes, for but those little 'things' that go EVERYWHERE? Nothing. Too much too all over I guess.
I just did a quick web search and really didn't come up w/much for small nerve issues. And that was negative at best. Sigh.

If you could tell us a bit more about your PN, onset and what tests you've had, lots of others here could help you A LOT! Please try not to be too shy?
And ask questions! None are too silly....I've asked lots of them! Sometimes it's those 'little silly things' that count!
Please chime in soon and often! :hug:'s - j

Well I was considering these but am probably skipping over this and getting a spinal cord stimulator. I am a little different then others here with my pn. The actual pain I have they feel is similar to rsd and is in my inner ankle/foot/calf and the other leg spread to. Who suggested these to you? If you go on the rsd board there are more who have had them. What are some other treatments you have tried? My concern with this and a big concern with the spinal cord stimulator is if it doesn't work to relieve pain and starts the fire as I call it going where I am in a terrible flare up.

I dddid once
 

This is before it got really bad helped for 5 months on lower .why don't you do what your heart tells you,well I guess we can tell you how it worked for us.Would I do it again no ,not for PN. Sue

Thank you for your reply.

I've come to this point after a long time in trying to find out just what is going on with me. After gall bladder surgery I had severe abdomen pain, mainly burning, which over the course of months spread to my upper abdomen. Then, my left hand went numb, with some tingling/burning in my thighs. A month or so after this my arms, legs and back suddenly started burning as if on fire. Finally, my face, mainly my forehead, also joined the party.

I've had a pretty complete blood panel done, and everything shows nothing with respect to underlying peripheral neuropathy. I've had twoEMG/Nerve conductivity tests, fine both times. My brain MRI was last Friday; I find out this week. I'm currently on 450mg Lyrica along with a lot of Tramadol. The Lyrica has just been raised, with a slight lessening of the burning.

I'm being treated at UCLA. My pain guy, wo suggests the nerve blocks, is Dr. Josua Prager. I saw him on referral with the idea my troubles might be RSD. But the only symptom I have is the body-wide burning; no other RSD signs.

I'm just looking for some relief.

I asked where because I thought it would be in Ca and at ucla. The person I was suggesting these was Dr Carden he is in Marina Del Ray and I know that him and Prager do a lot with these. If you google Carden you will get a lot of info on these blocks and rsd. I don't have a lot of the things that go with rsd other then the severe pain but they are still treating me like I have rsd and no meds have helped me either. When you have a lot of unknown in your test results and are in high pain I was told you can have rsd and not have all the symptoms and also when there is not an exact reason like diabetes etc. If you want you can email me and I will talk more about my experience with Carden.

Yes, I would love to email you to discuss this stuff. Thanks for the offer. How do I go about it?
(Oh, Dr. Carden's name came up in my search for a doctor here in LA, along with Sheldon Jordan. I ended up with Prager as my primary guy knows him.)

I just emailed you so I hope you get it. If not please let me know. Any other ?'s please feel free. Hang in there