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-   -   Advocacy begins when least expected! (https://www.neurotalk.org/parkinson-s-disease/4697-advocacy-begins-expected.html)

gaykir 10-25-2006 03:28 PM

Advocacy begins when least expected!
 
It must be a slow news day in Dallas! I was called at noon by the anchor of the local ABC affiliate here to see what we thought about the comments Rush made. It seems she had called our local PD group to see if our members were upset by Rush's comments. Our executive director said" Well as a matter of fact....."

After a very brief conversation the anchor asked if she could bring a camera man and come to the house to talk to Kevin & I about PD. Naturally we said that was great. They arrived at 1:30Pm and stayed for over an hour. We talked about PD, the uproar, the political issues etc - but in short we had a chance to get some mention of PD in the local news and that's a plus. We showed them this website and they filmed some the the comments made in some of the threads here.

The show will broadcast in two hours so it will be interesting to see what comes of it. Hopefully it will be their lead story and not not just a 30 second spot. We just want to let you know that all the hoopla has created some interest this disease. You just never know when you might have a chance to be an advocate!

Gayle

paula_w 10-25-2006 03:35 PM

Ok putting check by Gayle and Kevin's names.....they're hooked now,,,,who's next? lol...just kidding .....what I really want to say is

THAT'S TERRIFIC AND THANKS FOR REPRESENTING US!

Please let us know if there is anyway we can see it....can you tape and put on you tube?

paula

Curious 10-25-2006 03:50 PM

i'm here in the dfw area....i'll be watching for sure!!

gayle...can you pm me about your local group? the only meeting i have gone to was held at a church. it was a pretty small group. i'd like to find a support group for my parents.

paula...i will see if the station has live broadcast on the web. i know our cbs station does.

Curious 10-25-2006 03:52 PM

here is the web site

http://www.wfaa.com/

gaykir 10-25-2006 03:52 PM

Unfortunatley when our kids left home, so left the ablility to tape TV stuff. I'll see if I can find someone to do it. I just figured I'd wait and ask the station for a copy.
Gayle

Curious 10-25-2006 03:54 PM

gayle...i can tape it for you.

gaykir 10-25-2006 03:57 PM

You totally Rock (as they say)!
The Dallas Area Parkinsonism Society would love a copy!
Gayle

Steve 10-25-2006 04:02 PM

Can someone
 
put the video on YouTube, so we can all see?

Curious 10-25-2006 04:05 PM

i will do my best steve. :o i'm recording it on my computer and vhs. i pm'ed gayle my number.

as long as somebody can help me...hehe...i'll post it where ever.

gaykir 10-25-2006 04:41 PM

Already on their website
 
North Texans outraged over Limbaugh remarks

Radio host said Michael J. Fox was 'acting'


04:19 PM CDT on Wednesday, October 25, 2006

By DEBBIE DENMON / WFAA-TV


PLANO — Radio talk show host Rush Limbaugh is no stranger to controversy. But his comments about Michael J. Fox have some North Texans fuming.

Fox — who suffers from Parkinson's disease — appeared in a political ad encouraging Missouri voters to support a stem cell research measure. It showed him rocking and twitching.

Limbaugh said Fox was faking.

"This is really shamless folks, this is really shameless of Michael J. Fox," Limbaugh said. "Either he didn't take his medication or he's acting. One of the two."

Gayle Kirby is the treasurer of the Dallas-area Parkinsonism Group.

"Rush Limbaugh doesn't know his oxycontin from a hole in the wall," Kirby said. "What a bunch of crap."

Kirby spent most of Wednesday reading e-mails responding to Limbaugh's comments. She also spent time in a web chatroom to tell Limbaugh his accusations about Fox were wrong.

"Wehat I said before is, it's like saying a person with cancer is faking it because they lost their hair," Kirby said. "There's no logic to it."

For the last six years, Kirby has watched her husband, Kevin, suffer from Parkinson's. His tremors and twitches are not as severe as Fox's.

Kirby emailed everyone she knows to boycott advertisers of the Limbaugh show, and she took it a step further.

"We've been Republicans, dyed in the wool, forever, and we didn't vote Republican at all this time," Kirby said.

Limbaugh has since apologized for his remarks. But the Kirbys say the damage is done.

E-mail ddenmon@wfaa.com.


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