Hi. I'm new - undiagnosed sx....
 

Hi. I have been reading several boards on here since last summer. This is my first post. I really don't know where I "fit" in these boards. I have done a lot of research on my sx and have wondered about MS and CIDP. Finally starting to get my doctors to take me seriously!



Short History:

I had an onset of sensory symptoms, brain quakes/zaps and severe episodic vertigo 15 months ago that lasted about 3 months. Some of my symptoms never went away just became mild. I have had 2 more episodes with the last episode I have numbness and loss of vibration sensation in my right foot for a couple of months. The numbness is subsiding and the vibration sensation is coming back. Other symptoms: muscle twitching and spasms mostly from my mid body down however recently they have started in my arms and neck.

I have had 1 MRI w/o contrast(over a year ago). 3 very small non specific "white spots" were found between the junction of the grey and white matter (possibly angioplastic in nature). All blood tests are normal, diabetes, thyroid, vit. & mineral deficiencies have been ruled out. ENG/VNG show bilateral vestibular dysfunction of unknown causes.

I have recently had a NCV done on my right foot and leg which was abnormal. I don’t have the final report yet but I was told that there is slowing of velocity throughout the lower leg as well as conduction block in several nerves. They tested my right arm and noted similar results and polyneuropathy was mentioned. The left leg was not tested due to peroneal nerve damage and drop foot due to MVA 20 years ago.

The following are new sx over the last week:

On my right foot I can move my big toe up but not down. This is the one that is still numb underneath. I can move the little toe just fine. The banding feeling around the 2nd and 3rd toe has increased to include the 4th toe. I can't move toes 2,3 & 4 up at all. Approximately 6 inches of both forearms feel tight on top. Feels kind of like very light tingling.

If this sounds familiar to anyone I would love to hear from you.:confused:

Thank you for taking the time to read this!

Hello lynxgal and Welcome to NeuroTalk. I'm not sure which direction to turn you towards, but hopefully your'e test results will shed some light on what's going on w/you. Glad you found us and please make yourself at home and join in anywhere.

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Hi there lnxgal and welcome to NeuroTalk from me as well.

As DaisyMay already said, it's a little difficult to steer you in the right direction until you get some of your tests results back from the doctor, but I think it's probaby best to direct you to the Forum for Peripheral Neuropathy as a starter.

Here's the direct link to that one, but if it's not what you were looking for, please join in anywhere you feel comfortable. http://neurotalk.psychcentral.com/forum20.html

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I hope you get some answers soon

Hello Lynxgal and Welcome to our little corner of the world.

Please feel free to roam around and join in anywhere!

Hi lynxgal and welcome to NeuroTalk! I hope you get some answers from your doctors soon!

Hi, Lynxgal! :Wave-Hello: Welcome to NeuroTalk!

You might also benefit from using our search engine located in the toolbar near the top of every page. By entering specific symptoms, you will be able to locate discussions from any number of our forums. Feel free to join in anywhere. :)