NMSS - Why do they do this?
 

Every time I find a great link for information from the NMSS, they move it to some other location and the link doesn't work a few months later. What's with that? :mad:

I know some of you are connected to the NMSS, and wonder if you have (or can get an answer) on why they do this? How are we to keep people informed if they move the links all the time . . . unless we post the WHOLE article (and link) on the forums?

Cherie

I agree 100%. I had one bookmarked because I liked to add it in some newbie posts and all the sudden...gone! :(

I think you should point this out to NMSS because it hurts the population they are serving.

I have this issue with state or federal websites I use for education when a new administration comes in. If it ain't broken don't fix it

Well, since I am a Representative for the NMSS, I will take it up with them. We are having a meeting next week and I will ask...

I know that the website just underwent a huge revamping.

Cherie, could you PM me with some specifics?

Cheryl, you amaze me. You are so active in so many issues related to MS. Thank you!

Thanks Cheryl . . . done.

MOST links disappear in short order, at least the one's I seem to interested in. :rolleyes:

Cherie

Very important concern...
 

Yes, it would be great to have this concern brought up. Those who redo the website may not have any idea of the discouragement it causes. I know, there are times with ms, when it's just all we can do to type our concern and pray for some help. Then to have some of your great folks to give us the exact link to click on (which can be of great effort for you) then to try to go to it and it no longer be available. Not to whine, but I can say firsthand that by then, I'm too discouraged and exhausted to even persue it any longer (at times). So, Cheryl, thank you so much for asking about it. And thank you to those of you, Cherie and others, who take the time to share your expertise.:hug:

They do it because its fun to watch those with Cog Fog wander the hallways wondering where everyone went to.

Hire the handicapped, their fun to watch. :Trapeze 2:

That is frustrating. Most websites that move have a redirect - that is something that should be automatic if they are interested in serving clients.

It might have something to do with recycling the space on a server, or perhaps because they feel the information is dated . . . but this has been occurring for years (not because of any changes that happened recently).

I recall when Tysabri started to come back to market, the old articles disappeared into their "search" filing cabinet (they were still there, just not at the link that they were once at), and the link took me to the "this page is no longer available" notice.

The problem is that I keep the link so that I can attach it to postings, and so I don't have to copy the entire article. I don't keep the name of the article though, and even if I did, it's not always easy to locate again with their "search" function. Basically I have to try to recall some of the key words, then go "searching" (like googling) through their library of information by reviewing each article. I have found some that way, so I know at least some are kept anyway . . . the hard part is recalling the key words, then finding the specific article again. :mad:

Cherie