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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Scared!!! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/49247-scared.html)

over0protected 07-04-2008 01:39 AM

Scared!!!
 
I`m a seventeen year old girl, who was diagnosed with RND about three months ago. I have it severly in my stomach, nasea and not as severly in my wrist knees and ankles. I will be going into Dr.Sherrys program soon, I will be admitted for three to eight weeks for intense physical therapy. If anybody knows anything about this, or even something encouraging please reply!

debbiehub 07-04-2008 11:11 AM

Dr. Sherry
 
Quote:

Originally Posted by over0protected (Post 315449)
I`m a seventeen year old girl, who was diagnosed with RND about three months ago. I have it severly in my stomach, nasea and not as severly in my wrist knees and ankles. I will be going into Dr.Sherrys program soon, I will be admitted for three to eight weeks for intense physical therapy. If anybody knows anything about this, or even something encouraging please reply!

I have heard some really good things about Dr Sherrys program. I met a girl at the RSD walk who ran 2 miles and she had full body RSD! You can go to "search this forum" and type in Dr Sherry and you should come up with some stuff...

Hope that helps

Debbie

daniella 07-04-2008 11:38 AM

Hi. I am sorry you are struggling. I have read other posts about this program so maybe if you do a search and then email those people it can help you feel more ready. I did a maybe similar program at Cleveland Clinic well sort of. It was 8 hours a day 5 days a week with pt,group therapy etc. I lasted only 4 days and then was sent to get a catheter which I didn't do. I am thinking if I get the scs to do it again though and try to make it through the 3-6 weeks. It did help me the few days I was there in many ways. After that I leanred how to push myself through my pain which is not for everyone but in my case a must. Many coping mechanisms with the fear,anxiety,depression. Hang in there and keep us updated. Is this Sherry program only for young people meaning under18

ali12 07-04-2008 01:30 PM

Hey,

I'm sorry to hear that you also suffer from RND - I have RND/RSD in my left leg and right arm, I developed it when I was 12 years old (i'm now 13)

I've never been on Dr Sherry's program, however I am starting a similar program on Monday - I really hope that the program helps you as i've spoken to several people who have got better on Dr Sherry's program.

On Youtube theres a video of a girl named Alessa who went on Dr Sherry's program and her RND went into remission.

Sorry that I can't help you that much but I really wish you the very best of luck and I hope that u will keep us all updated

Take care
Alison

shannonmc 07-04-2008 02:32 PM

goood luck hope it works for you

ali12 07-04-2008 05:45 PM

Thanks - I really hope the PT program helps for you too. I'll keep you in my thoughts.

over0protected 07-08-2008 02:04 PM

Thanks for all the replys, yeah i`m extremly nervous to start the program, but what has been hard has the program never gave me an actual date when im going to start the program. I`ve been waiting and hoping to get in before school! So i`ve been waiting and waiting, as my stomach gets worse and worse. I`ve lost about ten pounds in two weeks since eating has been getting hard and the pain has gotten worse and worse sso i dunno! If anyone has any suggestions please reply! =)


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