How To Convince Family You Can't Work?
 

I do my best to do what I can around the house but what a normal person can do in 5 minutes it takes me an hour and everytime I do much of anything I end up in bed for days! What I have is not better with exercise, it causes more flare ups and pain and I will scream the next time someone calls me a faker! No Dr will give you 100 mg of Morphine to take every 8 hours and 15 mg of short acting 2 x a day for breakthrough unless there is a damm good reason! I have never failed a drug test or come up short on my pills...I usually have extra since they don't ever make the pain go away anyhow.I get so tired og the true druggies and drunks calling me a junkie...I sure as hell never feel high! Sorry for the rant, just getting fed up!

(((Junie))) I'm sorry. :hug:

Thanks for the link but if I wanted to end it all.., I would never come here! I will stay alive to spite them!

That link is a permanent part of my signature dear Junie...I would never assume that you would want to end it all. We lost our only son that way. :grouphug:

dearest junie
 

I am so sorry you are going thru not only physical pain but the emotional aspect of it also. Trust me when I say I know what you are going thru. I have the same type of pain. I hear all the time..."try to exercise for maybe 15-20 min. a day, you never know it may help". Well trust me it doesn't. I have to take a shower/bath in two different settings. First shower and wash and condition my hair. Then get out and rest approx. one to two hours. Then in tub and shave legs, and arms and finish washing. Then out and back to bed for another 1-2, sometimes three hours. I can barely unload the dishwasher. Pain is bad, not as bad as yours, I don't think, my problem is with exhaustion. Just sheer exhaustion. I used to be able to babysit 4 young toddlers at a time. Before that I held an Office Manager position for a big publishing firm and worked about 60 hours a week. But after I had my complete hysterectomy (at age 29, which sucked) I haven't been myself. I can''t make decisions, I am forgetfull, I hurt so much and I AM SICK AND TIRED OF IT.

So thank you for your rant...it gave me the chance to rant also. I wish I could help you with your pain, but unfortunately I can't. I can though tell you to speak your thoughts on here as much as you need. Get it all out. It does make you feel better.

Missy :sorry:

Sorry Alfie, just did not want anyone to think and I have been off forums so long I forgot how sig work:(
Thanks Missy,
So many people don't understand how my one little effort is like climbing a mountain to them! I too not only hurt all the time but also have no energy and when I get a small burst (it usually comes from hurt or anger) I have to grab it and if they see I washed dishes then it must mean I fake the rest of the time! I went on vacation for 10 days and not one thing was done, and someone even had the nerve to call me in Fla to cuss me for not washing dishes, Grrrrrr, I was not home to dirty them!!

HI Junie,
I'm sure if I searched, I'd find the answers...but I'm wondering what is causing your pain? What's your story? I've had episodes like you from MS symptoms as well as my bad back. Just wondering what is going on with you.

Off to work so I'll check in at a later date.

HUGS
J

symptoms
 

yes June , what do you have for a illness or what happened ? Can surgery be done ? Have you been to a Pain Clinic ? Have you had recent Xrays. Tell us your story. :hug: Roz

I'll pray for you...Sorry..

pete

It is called arachnoiditsis, nerve pain, no cure, came from fusion surgery in 06 when NS cut into my spinal cord twice and my spinal fluid filled with blood. I had to lie flat on my back for 5 days, was in hospital for 12 days instead of normal 4-6. The nerves that are supposed to dangle below my tailbone are now balled up forever in a clump and there is nothing they can do. I am fighting for a pain pump and will never stop since that is only thing I hear that gives others like me any quality of life! I am waiting on disability since may of 06, was told my aJL hearing may be another 18-24 months, was denied twice already. I had to begin self cathing Prn this year and I see colon surgery in my future...hope I can afford it! The numbness is here there and everywhere, it travels as well as the pain, although it never leaves my back and left leg, left arm is losing some functioning. Other then that I am just fine!!
Sorry all,
I am in terrible mood, another fight with loving son!