Hi i am looking for any body in Syracuse NY
 

Hi this sums up my story a little bit


I had TOS surgery on November 16th of 2007. I had a first rib resection and anterior and middle scalene resection, right side, sympathetectomy. It was the worst mistake i had ever made. It made it worse. The pain is not just on my right side it is now on my right side and left side. And the surgeon said it is what it is. I was angry and upset that the surgery had failed. I was hoping this was going to take care of my pain but instead i have burning pain in both of my arms and my neck kill. My finger tips on both of my hands hurt. And to top it off my shoulder blades are on fire and have spasms. And now my feet are cold and purple. IME doctor said the surgeon didn't complete sympathetectomy. He said he should of taken out the stellate ganglion. Now i have RSD/CRPS upper extremites, Raynaunds Diease and Hourans syndrome. And now its spreading in to my legs.

Hi fire,

I dont currently live in Syracuse but went there for school.

But I am a TOSer as well. Only had surgery on the right side, no rib resection but scalenectomy. For a while after surgery I had some angry nerves. And needed a stellate block and had several other sots from an RSD doc. Still not sure if it was really RSD or just overreaction from the surgery.

But it has taken a full year for my TOS to calm down enough for me to think that maybe it was a decent surgery, not sure I would call a full success.

I cannot hlep on the rsd front but wanted to let you know you are not alone and give you some gentle :hug::hug:

Thank you for replying back i dont understand how to post on here, do you know any one on here from syracuse