MG getting me down
 

I'm posting this thread because I REALLY need to talk to someone, and I don't want to dump on my family. I know before when I've been down I've come here for support, and you've all been wonderful, so I really just need to talk to people who really understand.

My dear dog Ned had to be put to sleep about 2 months ago, one week before my birthday. He'd been with me for 14 wonderful years, but he was very sick, with liver spleen and stomach cancer, so now he is running with all his mates up in the big paddock in the sky.

I started to get a cold late May, and it turned sinusy, ended up in hospital with a raging temperature. Thankfully only stayed 3 days.

Now my MG is just awful, I can hardly type, and doing everyday things like washing dishes is a chore, its frustrating after doing so well for a while. Just when I seem to be doing well something comes along.

Sorry to whinge, I think I just need to get things off my chest,

I hope you are all doing a little better than me
take care
redtail

Hello again! I'm sorry to hear you're down.......I know how frustrating it can be when you feel crappy.....I had kind of a bad day yesterday and it scared me. It's just so hard b/c one day we're almost back to normal, then it all falls apart. When I'm really weak I ice down my muscles and that seems to help a LOT, plus it relieves anxiety, and I did read something in one of the sites about icing down (bag of peas/corn/etc.) your muscles or eyes if they are tired.

I'm so sorry about your dog. I also had a beautiful little girl who was with me for 16 years that had to be put down 5 days after I was diagnosed, and I was too sick to go tot the vet with her. It was heartbreaking.

I know how hard it is, and do have you in my thoughts and prayers. It's perfectly normal to get upset about our disease, especially since so few paople actually KNOW anything about it, and usually chalk it up to depression. We are going to be great however - BETTER than before! We're going to be stronger and wiser and (hopefully, in my case) more sympathetic to others from now on.

Please take care of yourself; don't over do it! Try and get lots of rest and surround yourself with loved ones. (Also, seriously try the ice thing, it may really help and certainly won't hurt anything) Also, give me a "buzz" if you want to talk. I'm here for you. :)

Sorry to hear you are not doing well...it really sucks especially after doing so well for a while.

I'd been stable for ~1year until my latest fun (posted previously), which continues to keep me from my normal activities (ie. breathing while walking, eating...). I'm chalking it off to the heat and am doiing me best to stay cool (which isn't too hard b/c I don't have the energy to leave the house.

Somehow even after years of these ups and downs I'd get used to it and just accept that sometimes I can have a normal life and sometimes I can't do anything, but I tend to fight it constantly.

Obviously resting and not over doing it are the best things for you (and me) now, but it doesn't make it any easier to accept it all.

My husband has a hard time figuring out why I don't just accept that I can't do anything right now...sometimes I think the ups and downs are the worst part...just when things are doing well, for no apparent reason things crash...

:grouphug:I just want to let you know that I understand how you feel and that support is th purpose of this forum and we are here for you.

Redtail,

I am so sorry that you have not been well. We all can understand & relate to feeling like everything is a chore. You will remain in my thoughts & prayers. Stay strong & keep the faith.

Nancy Lee

I can't really add much to what the others have already said. But you can get my best wishes and prayers.

thanks all for your kind words, it has really helped.

I hope you are feeling a little better today (at least outlook wise)--you are in my prayers