Long time, no post
 

Hello everyone,

I hope you remember me, my name is Kellie from the old forum. I had severe ear pain as my primary problem, and was diagnosed with TN. Went through steroid injections, meds, all helped very little. I finally went and saw a Neurosurgeon in July and had an MVD. I was bummed that I couldn't get on and get any info. due to the site being down. Well, it turned out that I had a compression on both my 5th and 7th nerve, kind of explaining why my pain was predominantly in my ear. The surgery was a success (no more of the horrible stuff and no meds), but I have had a bit of a set back. I have a CSF leak that was found Sept. 4, and I still have it. It was a huge fluid filled bump on the back of my head, near the surigical site. Now it comes and goes but is never as big as it was. My face is very swollen on that side as well, but it is not actual swelling as it doesn't respond to ice. The Dr. thought it might be CSF leaking into the tissues of my face. Anyways, has anyone here had a leak before? I am starting to become concerned as it has been some time now. I get headaches that are positional, quite a bit of pain on the back of my head, and although the Dr. says it has nothing to do with it, I have pain on and off in my lower leg. I was told its best if the leak will close itself. I am supposed to get an MRI next week. If anyone has any advise, I would appreciate it.

I am so glad I can again