My mom was dignosed yesterday
 

My mom was told by her neuro that she does have mg. She isn't showing symptoms right now compared to her previous appointment. The blood work did confirm the diagnosis.

Her neuro has decided that if she isn't showing symptoms he's not going to treat her with the meds for mg. Her only possible symptoms right now are extreme tiredness after being out for a little while and eye twitching/blurriness. However, the blurriness seems to have lessoned since her last appointment.

It's hard to know what is what because in February she had brain surgery to remove a tumor that was benign. It was a calcium tumor and they got it out. The hard part is figuring out what symptom is from the surgery and what is from the mg.

For now, it's a wait and see game. Does anyone else have mg but not being treated?

I'm sorry about the dx Sandy. I don't have any advice...don't know much about MG.....just wanted to tell you I'm sorry and give you a :hug:.

I know you've been through a lot with you Mom these past months. I hope things settle down for you (and her, too).

I'll keep her (and you) in my prayers. :)

I'm so sorry Sandy. http://i90.photobucket.com/albums/k2...linky/hug3.gif

So sorry to hear that, I new they were considering it but hadn't heard anything so I thought they had ruled it out!

Sandy you know you, jim, boys and mom are deep in debs and my prayers and thoughts,

so what is the neuro thinking perhaps the similar SX's might of been side effects from the surgery? and even though she tested + hopefully the MG isnt active? I am not sure if MG is like MS flare up and down or constant.

Saying an extra prayer for strength for you :hug:
hang in there friend :hug:

now I know how people feel when I say "Multiple Sclerosis"

like, I've *heard* of MG, but didn't know jack-squat about it.

so I looked it up.

http://en.wikipedia.org/wiki/Myasthenia_gravis

my thoughts and prayers are with you and your mom, Sandy.

I know they say God doesn't give us more than we can handle, but sometimes... it seems unbelievable just how much gets piled on our plates.

hugs, and hopes that it stays relatively benign.

:hug:

Frank, I really don't know all there is to know yet but it seems to go in and out of remission. Honestly, I am not well versed in this disease at all and hope some others who are come in and shed some light.

Kay, I know what you mean. I too was wondering when they first said it could be MG about a month or so ago. :-(

Keeping your mom in my prayers Sandy.:(

:hug::hug::hug:

Hi Sandy

how very frustrating for your Mum and you. I had vaugue symptoms for a while, then full blown symptoms, so no I'm not in the catagory you're looking for. But be aware that symptoms can (and they vary hugely from person to person) go from not much to quite symptomatic quite quickly, well they did in my case.
I hope things don't get too bad for your Mum
take care
redtail

Sorry to hear about your mom.
I guess that being that your Mom is fairly stable right now may be the reason the doctor is holding off with treatment. I would say the most important thing is to have a good neuro, really good.:) One who is well versed in Myasthenia. There are some good links above to start reading. With M.G. everyone is different.
I would ask the doc what he intends to do, what further testing has your Mom had, or going to have. Be familiar with the list of drugs to avoid, there are many. Heat can make you worse, you cannot overdue.
A good neuromuscular doc can help sort out what is M.G etc. Did she have a chest Cat scan. Usually contast is contraindicated.
As with M.G. the biggies to look out for are any breathing and swallowing problems. I hope your Mom's case stays mild and limited. M.G. is tricky though and just keep you eye out for other issues.
I have had years of no meds{not diagnosed} and then went through other treatments, some aggressive. Right now I take high doses of Mestinon, trouble with other treatments and am pretty limited. Everyone is different. This is just a start for you. I am sure others will offer help, the board is a bit slow. I hope this helps and your Mom.
I would say though at some point, treatment is started. Sometimes one also weighs the risk of the treatment also. ps try to avoid crowds, sick, colds coughs etc. M.G. is made worse by many things. I hope this helps, if you would like more info, links, we can help out too. Best to your Mom and family.