new member - small fiber neuropathy
 

Hello, I am new here.

I am a 50 yr female just diagnosed after a year of horrible pain with small fiber neuropathy - a punch biopsy diagnosis. I have been on so many meds I cant count them. The only thing that has worked for me is prednisone. Dr. believes the cause of my neurpathy is either the result of taking Crestor for cholesterol or an autoimmune issue. I came off the prednisone, as it was not a drug I wanted to be on forever, and went to a new neuro who did the punch test for confirmation. He started me on Lyrica which did not seem to work. I suffered a severe relapse yesterday and again I cannot walk due to the pain. Needless to say, I am starting prednisone again. Just looking for any info that can be provided on this issue.

Thanks

Hello spkar0517 and welcome to NeuroTalk.

I'm so sorry to hear about the terrible pain that you've been through. I thought I'd give you some links to our Periperal neuropathy and Chronic Pain Forums here on the site where you may find others with problems similar to your own.

You may also be interested to know that we have a Medication Forum where our resident expert Mrsd may be able to answer any related questions, should she see your post.

Periperal Neuropathy: http://neurotalk.psychcentral.com/forum20.html
Chronic Pain: http://neurotalk.psychcentral.com/forum10.html
Medication Forum: http://neurotalk.psychcentral.com/forum72.html

Hello and welcome to Neurotalk - you will meet many great and supportive people here!!

If you need anything please don't hesitate to ask, I am more than happy to help you in any way I possibly can.

I am so sorry to hear about the pain you are experiencing :hug: and I hope you feel better soon.

Best wishes
Alison

Hi and welcome to NeuroTalk! I'm so happy you decided to join us! I see Koala has given you some great links to the forums. Please feel free to join in anywhere you feel comfortable and don't hesitate to ask for help if you need it. There are lots of very caring and friendly people here at NeuroTalk and we're happy to add you to the group!

spkar!

One big, warm, tight, hug, handshake and howdy, moose size, official type welcome to the site. This place is amazing!

If I remember right, we've got our own forum just for neuropathy. But just like any mall, you can wander into anywhere!:D So keep in mind;

You are not alon.:)
You are one of us.:hug:
And we are here to help.:grouphug:

Welcome to this site... I just found this site a few weeks ago myself. As everyone has stated, it is chock full of very useful info.,..

Welcome to the site spkar, as others have said, there are many helpful and kind people here, again welcome to the group:Tip-Hat:

Hi, Spkar! :Wave-Hello: Welcome to NeuroTalk!

I see that our little Koala person has given you some starting points. I hope you'll find the needed answers soon, and please feel free to join in anywhere. :)

Hello, I'm very happy to meet you. Welcome to the Neurotalk Forums. I am so sorry that you are suffering with your pain. It's something I'm quite familiar with, but never seem to get used to. I'm not familiar with your condition, though, so I don't know how to help. I just want you to know that I honestly sympathize, and hope very much that you find some relief very soon. Good luck. :hug:

thank you
 

thank you all for the warm welcome.. i have not yet figured out how to navigate this site, or the others you have so kindly referred me to.. i am also wondering if i have erythromelalgia as for example, tonite, i am cold, but feel as though i am burning from the inside out..my feet are bright red and hot to the touch.. my arms and face are following. i want to just jump in the cold pool... i feel like i am swollen from heat and about to burst from the inside.. does that make any sense to anyone?