Bye Bye Monotherapy... on two AED's now.
 

Dr.Parrotts nurse Leigh called me back yesterday about the increased seizures and the side effects that will not go away from the Topamax, he wants to add Keppra to her Topamax.

I have known for a long time that this was going to happen. It was no surprise, but it was something that I had wanted to avoid, very much wanted to avoid. I am torn between optimism and anguish. This could be the magical solution to the seizures that just won't back off. At the same time it rips my heart out that things have progressed this far, what does the future hold for her?

I am concerned about Keppra being his choice, I know she wasn not on it long when we tried it before but the short time she was on it was aweful, she was so agressive it was unreal. Leigh said he didn't really think that would be an issue this time around but to let them know if it started to be a problem.

Tonight will be her first reduction with the Topamax and the addition of Keppra.

I am a nervous wreck.

I am sorry Denae. I have heard good things abut Keppra. Did you neuro not consider Lamictal? Fewer side effects i think. beside sleep issues, Ava is doing pretty good on it.
Hope things improve soon.

sigh.

(((Denae)))
prayers this works out marvellously and erases all the bad feelings that go along with having to accept it,
cj

Denae-

(((((hugs))))) to you and to that sweet little redhead! I know you are stressed about this but it could just be the answer you're looking for. Fingers crossed here that it is.

I am so glad that Dr. Parrot is being aggressive with these damn seizures. I just KNOW he's going to find an answer for that sweet girl.

Keep us posted!

Wendy

Denae, Saying Prayers that this all works out for the best!! I can't imagine how your "Mommy heart" is feeling right now. Let us know how it works out for her!

{{{HUGS}}}

Robin

(((Hugs))) I remember the last time you tried Keppra. (I guess it'll be a loooong time before you forget.) I am glad you're reducing Topamax. I was getting concerned with the side effects. (And, of course, you're making all of these changes to make *me* happy.:o) Is it "officially" tinnitis from Topamax? I hope Keppra goes much better this time. Riley is on a multi-vitamin, isn't she? (And it's gluten-free, too?) Don't forget the B6 for moodswings and lots of water... both for Topamax AND Keppra. Prayers for calm days and nights, as well as seizure-free days and nights.

{{{{Denae}}}}}
My mommy heart just breaks reading your post. Know that prayers are going up that this will work for sweet little Riley.....Hugs dear...
Tracy