NeuroTalk Support Groups - Hello, i'm a new member

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Hello, i'm a new member

Hi, I just joined this week. I've posted a bit and now i'll introduce myself. I live in Maryland and have two grown kids. On August 22 I hope to be finally divorced.

I have recently been diagnosed with a white matter lesion of my right parietal lobe.:( Not so bad f i n a l l y getting the diagnosis but what is bad is years of medical professionals saying: "It's all in your head" "If you just tried harder you wouldn't be so affected by any deficits nor difficulties" "Are you sure that you really have any problems at all" Yup, poster girl for a magazine article titled: I went to 17 doctors before I finally got a diagnosis.

In the list of forums, brain was not one of them. What I could use support in is for nontraumatic acquired brain injury. My lesion causes a roadblock of messages along a major information highway. Some stuff gets through just fine not a scratch. some stuff gets a little scrambled. And some stuff doesn't get through at all. Translated that means i have cognitive and psysical deficits.

Thanks for listening

Power to the perky people!

Welcome perky you will find lots of helpful folks here. I know how frustrating it can be to get the right diagnosis, it took me a number of years, 30+ hospital visits, i even began to believe the last few docs telling me it was in my head, ironically they were correct, the ms lesions were in my head, again welcome to NT

Hi Perky and WELCOME!
Yes...getting a DX seems to be an MSer's lament. LOL!
Love your posting name, it is very 'positive'!

Hugs,
Jenni

Hello and welcome to Neurotalk! You will meet many great people here and if you have any questions, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can.

I'm sorry to hear that you are having such an hard time getting diagnosed:hug: - I do understand though, I suffer from RSD (A chronic pain condition) and I saw over 30 doctors before I finally got a diagnosis.

Thanks and i'm looking forward to seeing you around the forum soon!!

Alison

Hi Perky! Welcome to NeuroTalk! Glad to have you join the group!

http://i283.photobucket.com/albums/k...0Cats/CATS.jpg

Hello everyone,

I'm new to this so bear with me if you will. I was diagnosed 3 years ago after going to many different specialists. Finally when my right side went completely numb my neurologist had me get an MRI of my spine. She kept telling me that my brain was pristine (taken for migraines) so she didn't think it was MS, it could be cancer or some other terrible disease. When she got the results of my spine MRI I had a leison there. Then 3 months later she finally gave in and had me get both a spine and brain MRI. The nurse called me on January 3rd telling me I had MS. We were just settling into our dream home and it floored us.

I went to the doctor on 1/9 and she said that I had Dawson's fingers and it's a definite sign of MS. She showed me the MRI and it looks like someone laid 3 fingers across my brain. She also told me she had never seen a brain change that fast before. There were a total of 20 leisons on my brain.

I was finally able to put a reason to why I couldn't do my job anymore, or come up with simple words when I needed them.

I guess my point or questions is, is there anyone else out there like me where they have gotten so many leisons so quickly?

Thanks for listening

:confused:

Perky!
One big, warm, tight, hug, handshake and howdy, moose size, official type welcome to the site. This place is amazing!

UGH! :mad:Stupid doctors. I hate 'em. Glad you were finally able to get a straight answer though. I, and many of us here, have the MS. What you described sounds very familliar. So know you are among friends.

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:

P.S. Love the username!

Hi, Perky! :Wave-Hello: Welcome to NeuroTalk!

Is there a name for this condition? I have legions of lesions but mine are courtesy of MS and seem to think they are to reproduce like rabbits. :o

I'm glad you've found us, be sure to explore all over, there is always a lot to see here at NT. :)

And welcome to Neurotalk! I'm happy to meet you. I, too, am familiar with the vast frustration which the medical field can generate. It took 28 doctors and six hospitals for me to get a diagnosis which I still think is wrong. But when it comes to your health, giving up is not an option, right? I hope that now that you have a diagnosis, they can do something about it, and help you feel better. Good luck, Perky, and all my best wishes. :hug: