post polio syndrome PPS
 

Hi,

My husband & I have done research on pps and believe this what he has. Had polio since 2yrs. in left leg. Now I think it is back full force attacking all joints. His good foot is numb and painful at the same time. It looks to me as if it is starting to deform as the other one did.
Always managed to walk ok with some pain with the polio foot. . Now, he can barely walk at all. Cleveland Clinic yesterday, and going back tues 7th. for tests. One test is EMG. Any one here had one of these tests?
Any info. will be greatly appreciated.

Also, any one know of a specialist in this field? We went to Cleveland Clinic and saw a neuro. I would like to go to someone well versed in pps.

Thanks in advance for any help.


Kitt00

I've made a copy of your thread here in the General Health Conditions & Rare Disorders in hopes of increasing your chances of feedback regarding this.

Best of luck to you and your husband!

Thanks Ellie,

From what I have read so far, there is nothing that can be done when polio returns.
Thanks for the help

Kitt00

Hi kittoo, That's pretty much the way I understand it. My younger brother had polio when he was 2 1/2 years old. That was years ago and now he has Post Polio Syndrome. There were others in my area who had polio years ago and some have PPS and there was and is nothing they could do.

Kitt

(copied from the General Health Conditions forum)

Hello kitt00!

My Dad has PPS. Like your husband, he had Polio when he was 2 y/o (in '31). Had surgery in the '70s to straighten his toes, and has always had one leg shorter than the other. That adversely affected his spine, and has always walked with a limp, which is quite pronounced now.

His PPS was dx'ed (diagnosed) maybe 20 years ago, and not much has been learned about the "Syndrome" since then. Dad has gotten progressively weaker over the years, helped along by emphysema, and now prostate cancer.

From what little I understand about PPS, it isn't that the Polio comes back...it is that the body (that may have seemed fine for years ~ heck, Dad used to march in the Crimson Tide Marching Band! ) is older now and unable to compensate for the damage done by the Polio. So it appears that the disease is starting up again. This only my understanding; please don't take it as fact!

Wish I could answer your questions.:( Dad was living in the Dallas area when dx'ed, and now we are in Mississippi where health care is a bit of a (not-so-funny) joke. Perhaps you could contact the Mellen Center in Cleveland. They specialize in Multiple Sclerosis (my disease), but where there's MS, there's neurologists, and EMGs....hey, maybe ask about EMGs on the Multiple Sclerosis forum! Its a fairly common test done on PwMS (People with MS).

Good luck!