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-   -   hi neuro talkers my story, so glad I found this site (https://www.neurotalk.org/new-member-introductions/51930-hi-neuro-talkers-story-glad-found-site.html)

vini 08-12-2008 09:33 AM

hi neuro talkers my story, so glad I found this site
 
hello neuro talkers
I have had a head injury on the 19th of December last year were I got fractures to my, frontal / temporal / maxilla/ and orbital floor bones on the right side of my head I have no sensation in the right side of bottom eye lid/ nose top lip/ teeth and gum's also double vision in my right eye I came to in the waiting area of a hospital not knowing were I was or what had happen I could not see my phone so asked the receptionist to call my partner she said the police had phoned some three hours earlier and said I was in a bad way but was ok this was 3am my partner came out with my 7 year old when they arrived I was finally seen by a doctor I could not tell my left from right when xrayed I was given a letter to take to another hospital some 30 miles away ( the queen Victoria East Grinstead uk famous for its work WW2 fighter pilots burns victims known as the gini pig club) there I was scanned told the extent of my injury's they said they could not operate until the day after boxing day 7 days away they gave me some anti bots and pain killers and told me not to blow my nose ( No head injury sheet) a couple of days later I got a cough and cold every time I coughed I had clear fluid run out my nose (not mucus) from the cold about an egg cup full a day salty and thin clear liquid I now know was CSF leaking , I returned to the hospital for the op to fit 3 metal plates to the fractured bones I got into bed and told the nurse that I was worried about this stuff coming out my nose, she said can you make it come out so I coughed and it trickled out . she went and got the surgeon who done some neurological tests he said he could not operate and sent me for a brain scan I was to return for the op on new years eve which I did and the op was done the staff at the hospital were all very nice , but I am left with crushing daily head aches, short term memory loss, find it hard to think, low mood, and a salty taste at the back of my throat could this be the CSF leaking I have had to give up work as I could not cope with my job any more, I have an appointment on the 18 September with a neurologist , Can CSF leak internally ? will my symptoms get better if they can fix it ?
ps I was a victim of an unprovoked attack at a railway station but still have no memory of that night
kind regards Vini

AfterMyNap 08-12-2008 11:33 AM

Hi, Vini! :Wave-Hello: Welcome to NeuroTalk!

Holy cow, Vini! What a horror story, I'm so sorry that a random event like that has turned your whole world around. :(

I see that you've found our PCS forum, you might also try using our search engine that's located in the toobar near the top of every page. While none of us is medically qualified to give specific answers, I'm sure you'll find some relevant discussions. Feel free to join in anywhere. :)

Kitty 08-12-2008 01:08 PM

Wow, Vini, I'm so sorry to hear all that you've had to go through. I'm glad you found this board - and I know you'll find everyone here friendly and very helpful.

I hope things turn around for you and that your Neuro can find a way to give you some relief.


Koala77 08-13-2008 03:49 AM

http://i157.photobucket.com/albums/t.../Welcome-2.gif


Hi there Vini. I too wanted to drop in and welcome you to NeuroTalk.

Please let us know if there's anything we can help you in any way.

graydove 08-13-2008 10:39 AM

Vini
Head injuries are hard to live with they have unseen effects, short term and long term. I have lived with one for over 30 years. I'm sorry this happened to you. Retrograde Amnesia is not uncommon. This is a type of Amnesia one develops where one does not remember anything leading up to the event, nothing previous. I lost a complete day, the accident I had was in the evening. I do not remember anything from the morning of the day till I woke up in the hospital a few days later out of the coma. CSF can leek as you describe, as for the symptoms getting better, only time will tell. Sometimes with help the brain may rewire itself to compensate damaged areas, kind of going around the damaged areas. But the areas that may take over are not as strong as the original areas and can breakdown if under stress or another concussion takes place.
Blessings Sheila

ali12 08-13-2008 11:08 AM

Hello and Welcome to Neurotalk - you will find many great and supportive people here!!

I am so very sorry to hear about everything you have been through and are currently going through :hug:

If you need anything, please don't hesitate to ask - I am happy to help you in any way I possibly can!!

Thanks and I am looking forward to seeing you around the forum soon!!

Take care

Alison

vini 08-13-2008 11:55 AM

thank you
 
Quote:

Originally Posted by graydove (Post 345825)
Vini
Head injuries are hard to live with they have unseen effects, short term and long term. I have lived with one for over 30 years. I'm sorry this happened to you. Retrograde Amnesia is not uncommon. This is a type of Amnesia one develops where one does not remember anything leading up to the event, nothing previous. I lost a complete day, the accident I had was in the evening. I do not remember anything from the morning of the day till I woke up in the hospital a few days later out of the coma. CSF can leek as you describe, as for the symptoms getting better, only time will tell. Sometimes with help the brain may rewire itself to compensate damaged areas, kind of going around the damaged areas. But the areas that may take over are not as strong as the original areas and can breakdown if under stress or another concussion takes place.
Blessings Sheila

hello Sheila
thank you for your reply and info this forum and its members is helping me so much, some times the people close to us just want things to be as they were, I try to not bring them down especially for our children, they did a good job on my face so minimal scaring, and now understand that this will take time, I must concentrate on the fact that at lease, my symptoms hopefully will not get worse,unlike some of our members, but pray for a breakthrough in there treatment , but for me to understand my condition is to except it or overcome it

many thanks vini

Idealist 08-14-2008 01:37 PM

Hi, Vini...
 
It's really nice to meet you, and welcome to the forums. I'm sorry that this terrible thing has happened to you. It's amazing how fast one's life can change, isn't it? Amazing and scary, too. I don't know enough about your kind of condition to make any useful suggestions on how to deal with it. But I am very familiar with the pain and emotions which come with a serious situation like yours. I hope you do get better, and the headaches go away. Good luck to you, Vini, and all my best wishes.

vini 08-15-2008 04:46 AM

thanks
 
Quote:

Originally Posted by Koala77 (Post 345687)
http://i157.photobucket.com/albums/t.../Welcome-2.gif


Hi there Vini. I too wanted to drop in and welcome you to NeuroTalk.

Please let us know if there's anything we can help you in any way.

gooday koala thanks for your welcome I lived in nz for 15 years my 2 Eldest kids are at uni there by for now :confused:

tamiloo 08-15-2008 11:04 AM

Just wanted to pop in and say hello and welcome to NT...so sorry about your pain and frustrations...hope all is well with you today!!
http://i275.photobucket.com/albums/j...ls_welcome.jpg


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