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-   -   Vertigo / Nystagmus (https://www.neurotalk.org/multiple-sclerosis/52449-vertigo-nystagmus.html)

hollym 08-19-2008 08:02 AM

Vertigo / Nystagmus
 
I had the most horrific vertigo experience yesterday. I was so close to going to the ER and I still don't feel quite right. Those who know me well know that I vowed to never consciously, willingly enter an ER again after a bad experience, so that is how sick and desperate I felt.:eek:

I was working on the computer and my eyes started to feel weird - like back in 2004 when I had nystagmus. The next thing I knew, I had vertigo so bad that I wasn't sure if I was going to puke or fall over or both. I was so sick and it was so sudden. I literally had to lay down on the floor at work for awhile. I couldn't even sit up because I was spinning. Luckily I was alone at the office.

So, picture me laying on the floor of my office panicked. I laid there and called DH from my cell phone and had him bring me some meclizine. That seemed to calm it down, but I still didn't feel right and I still don't.

This was truly one of the scariest experiences of my life. I have never felt so out of control. I am so grateful that the meclizine helped, but it scared me. I really think it was a combination of my eyes and the CRT computer monitor plus I work under fluorescent lights.

So, should I call the opthalmologist? He was the first one to identify the torsional nystagmus in 2004. I haven't been to see him in probably 3 years - maybe it is time? I am having such an issue going to doctors lately. I just can't seem to get up the nerve to get back on the roller coaster.

Kitty 08-19-2008 08:36 AM

Oh my gosh, Holly, that must have been terrifying. Thank goodness you weren't driving.

I had issues with fluorescent lighting from the get go. I had to keep the lights in my office off and just use a desk lamp set a ways away from me. It never failed - anyone that walked into my office would flip on the lights. :mad: I finally put tape over the switch! The CRT would play tricks with my eyes, too. But, I never got vertigo.

I'd call the opthomologist as soon as possible. I'd call the Neuro, too, just so it can be documented on your chart. Not sure what, if anything, the neuro could do, though. I'm glad your DH was available to bring you some meds. It might be a good idea to keep some in your desk from now on...that way you're ready if it hits again.

I'm sorry for the scare you had....sometimes that wipes you out more than the actual symptoms do. I hope you get to feeling better soon.

SallyC 08-19-2008 11:20 AM

Sheesh, Holly, how scary. I'm so sorry this happened to you. I only had a vertigo episode once, but it was the worst MS experience I've had., IMO.:eek:

I'm glad Hubby came to the rescue, with your meds.:) ..and I hope this doesn't happen again, anyime soon..:hug:

Niko 08-19-2008 11:44 AM

Vertigo.... stinks. There are more appropriate adjectives to use ... but... feel free to use your imagination with that.

"Severe Vertigo" was my presenting symptom. At least in hindsight it was. I was bed-ridden with it for a month solid.

I was diagnosed with an inner-ear problem by an ENT; who declared it to be Meniere's Disease.

But a few months after that, I developed partial numbness in my hands and feet. The diagnosis was rescinded and then sent off to a neurologist.

After many more months and many, many tests: RRMS was the diagnosis.

I wish well anyone with vertigo. And wish it to disappear quickly!!!

Niko:cool:

hollym 08-19-2008 01:36 PM

Thanks guys!

Well, I've been on the computer most of the day with no real problems like yesterday, it is just making me more tired than ususal. I think that is what it was like before when I was working on the computer with the nystagmus. My eyes feel all worn out.

I tried to get up the guts to call the opth, but didn't do it. I figure that by the time I get there, this will be over so it won't matter anyway!

Twinkletoes 08-19-2008 01:39 PM

Glad you are feeling better today, Holly. Remember to eat your apples!

"An apple a day keeps the doctor away: if you throw hard and your aim is accurate." :D

Erin524 08-19-2008 01:43 PM

When it hit, did it feel like it floated up one side of your body, and ran down the other side?

Last summer, I was getting vertigo that would just hit me out of the blue. No warning before it hit. It felt like it hit me from the left side most of the time. It would come up my left side, spinning up thru my head and then felt like it went down my right side.

By the time the sensation felt like it was going thru my head, I'd be falling to the floor.

I had 2 weeks of oral prednisone, and it hasnt come back. I never want to experience that vertigo again, because I'll be begging for the steroids again, and I never want to have to take steroids again because of all the nasty side effects. Yuck!

MSacorn 08-19-2008 01:58 PM

Oh Holly, how scary. What a good hubby you have. Fluorescent lights make me disoriented. I still think you should get this checked out. I'm glad you're feeling better now.

:hug:'s

yeahbut 08-19-2008 02:27 PM

Holly how are you doing now? I have been having vertigo these last two days..... I don't like it at all.

tkrik 08-19-2008 03:15 PM

(((Holly))) I feel for you. As you know, DD16 has been going through bouts of vertigo with nystagmus. It completely immobilzes her. I am glad the meclizine is working for you. The ER dr did tell me that Valium helps as well. It is one of the only drugs that works directly on the vestibular nerve. DD16 had to take both just so she could move and they could examine her in the ER.

I do hope you start feeling better soon. I


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