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-   -   Tysabri? (https://www.neurotalk.org/multiple-sclerosis/52476-tysabri.html)

coletaterbug 08-19-2008 04:22 PM

Tysabri?
 
My doctor wants me to go to Vanderbuilt MS Clinic to see if Tysabri is right for me. Question: What does that involve? How many are taken it and seen a difference? Reason she wants to try this is because my flare ups are happening very often and she thinks this will help more than rebif. I have read some on Tysabri & it scares me to death about PML.

wkikta 08-19-2008 07:30 PM

The risk from PML is extremely low, less than 1 in 15,000. So low that it is almost not an issue.

katty 08-19-2008 10:37 PM

Quote:

Originally Posted by wkikta (Post 350561)
The risk from PML is extremely low, less than 1 in 15,000. So low that it is almost not an issue.

I wish it were that easy. Tysabri is a fairly new long term therapy. We don't really know what the long term PML results will be.

That said, I have had 13 infusions of Tysabri. I feel like I have my life back. At the same time, I am watching the latest PML developments closely. If you are considering Tysabri you should decide if you feel the risk of continued MS progreession outweighs the chance of PML. For me, it does.

Benefit vs risk.

Good luck.

Katty

Riverwild 08-19-2008 10:59 PM

Come on up to the top of the page and jump right in to the Tysabri thread! There's loads of information from lots of people who are on it!:)

17 infusions here and I wouldn't give it up!

ewizabeth 08-19-2008 11:21 PM

I get my 16th infusion on Friday. :) No problems here, and I won't give it up either. I've had totally unexpected improvements.


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