What did my doctor say?
 

Ok a few days ago i sat down with my doctor to go over all my biopsy results.
She showed me pictures....I understood....I got referrals.

2 days later after speaking with different people and doing research on the web; I am totally lost!!!!

Guess Im going to have to call her back on Monday and I want a copy of the lab results.

Heres what I think I know.......

the biopsy from the colon is coming up HPV. I am being referred out Colon/rectal specialists in Houston for surgery.

The tumor in my tummy may be more invasive so im being referred for a endoscopic ultrasound in Houston.

So HPV can cause tumors in other parts of the body? Which may or may not grow into cancer? Cant we do a body scan and see if there are any tumors elsewhere? Should i be worried about my brain? Would I be more at risk because of MS. And which should I get done first? Is there a time line? Plus i need to go back this month to repeat my pap. Spoke with several medical professionals.....all clueless. Gee Thanks!!!!!

Can anyone here help or answer these questions.

Is this Limbo??????

MM,

I'm so sorry to hear that you've got another challenge to deal with. I'm sorry I don't have any answers for you.

Sending you and your family prayers of Strength and Peace while you deal with this new medical issue.

Blessings,

I don't know what it all means, but I'll keep you in my prayers that it's benign or insignificant! I don't think MS can make you more predisposed to brain cancer, but maybe a body scan would be a good idea?

I hope you'll get some clear or helpful answers soon. :hug::hug::hug:

I'm sorry that you have all this extra stuff to worry about, and I have some idea of what you're going through, as I had a hemicolectomy last September for a tumor in my own bowel; but mine had nothing to do with the HPV.

Whatever they find, or whatever investigations you have to go through, please know that we'll be thinking of you. We'll always be by your side and we'll always be there to support you through it all. Big hugs MM. :hug:

I would have to say if its not limbo its pretty close. Ok so you got a couple answers but more questions, maybe read this post to the doctor,

I got lost at the HVP, I am not familar with what that is, was cancer mentioned? I pray not, I agree 100 percent on calling the doctor, and ask all these questions, they are important questions

what prompted them to look, was it your blood work, did they see something in blood count. Sorry I do not have an answer on this, I am thinking and praying for a fast and positive outcome

I hope you get some answers. :hug:

HVP is best known for causing cervical cancer, but the virus can cause other cancers.

-Human papillomaviruses (HPVs) are a group of more than 100 related viruses. They are called papillomaviruses because certain types may cause warts, or papillomas, which are benign (noncancerous) tumors. The warts and other benign lesions caused by HPV infection can be treated.

-Most HPV infections occur without any symptoms and go away without any treatment over the course of a few years. However, HPV infection sometimes persists for many years, with or without causing cell abnormalities. This can increase a woman’s risk of developing cervical cancer.

-HPVs may also play a role in cancers of the ****, vulva, vagina, penis, as well as oropharyngeal cancer. Researchers are conducting research on HPV-related cancers.

http://www.cancer.gov/cancertopics/f...page=&keyword=

Cherie

i wish i could be of more help.
you might consider another appt with this dr and bring someone with you who can be a 2nd set of ears. that person can also ask Q's and write down what the dr says while you're there.

i'd get the non-surgical tests done first. like pap smear, endoscopy etc.
get copies of all these tests and the results and start keeping a file on yourself. also, ask for copies of the dr's dictation. you'll learn a lot.
you may have to sign a release but you have a right to the info. do this as you go along as the copies will be free. if you wait and ask for 2 mos worth they will charge you copying fees.

you might also want to discuss all this with your pcp. your dr should be able to condense this info in terms you can understand and help you with referrals and to coordinate the care you need.

sending prayers you way.
please keep us posted.

Thanks Cherie! Great info, but I wanted to ask about this one. :) You mention that HPV infections can 'go away' without any treatment over the course of a few years.

Does that mean that HPV is not a virus that one will deal with for the rest of their life after contracting it? I'm a bit surprised... I thought it was a life virus if you got it. Good news if it's not and I misunderstood :)

I'm obviously interested myself in waiting for the results of my Colposcopy. I'm not stressed about that test anymore. It's over, the doctor said he couldn't see any immediate concerns, etc. Which is great :) Just waiting on the results now of course.

You are probably thinking of genital herpes, which is a lifelong problem with or without outbreaks.

Every few years they learn a little more about HVP. According to the latest theories (and bearing in mind there are 100 different HVP virus types):

- An HPV infection is usually harmless and temporary: most people with HPV will never know they are infected because the virus usually goes away on its own.
- There are many types of this common virus, and only a few “high-risk” types can lead to cervical cancer. Most cell changes return to normal by themselves or simply die without progressing to cancerous lesions. It is very rare for an HPV infection to lead to cervical cancer.
- If high-risk HPV types don’t go away on their own, they may progress to abnormal precancer cells. (If these abnormal cells are not found and treated, they may become cancer over time).
- These high-risk HPV types are spread through sexual contact. It is difficult to determine whether a partner who has been sexually active in the past is currently infected. HPV infection can occur in both male and female genital areas that are covered or protected by a latex condom, as well as in areas that are not covered. The surest way to eliminate risk for genital HPV infection is to refrain from any genital contact with another individual. (i.e. sounds like complete abstinence or only two virgins should have sex . . . yeah right! :rolleyes:)
- There are also “low-risk” types of HPV that can cause genital warts but do not cause cancer.

http://www.arhp.org/healthcareprovid...ancer/faqs.cfm

Cherie