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-   -   Wow do I need help (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/52759-wow-help.html)

ltassone 08-23-2008 07:32 PM

Wow do I need help
 
Hi, My name is Lori. I have I had Decompression Surgery in July of 2000, with some complication. No big there. However some Symptoms went away, and new ones popped up. They inserted a shunt in 2003 for intercranial pressure. after 3 revisions it stuck and my headaches are better!:) The one thing that never went away is the pain in my back of head, neck and mid way down the spine. I have been on to many different medications iincluding pain meds. (I am allergic to anit-inflamitories)
Recently I bit the bullet and took my self off of all narcotic pain meds. No it didn't help. I just know that somewhere out there there must be a happy medium. I have 3 teen age girls that need me and I not there for them. Does any one out there have an idea of where I can go for help. I've run out of ideas and my husband is out of patience. Thank Lori

razzle51 08-24-2008 11:26 AM

NO 1 you should have never taken your self off Narcotics. Glad you are ok. Go back to the NS that did your surgery . If you havent since your surgery you really need to get back to him to take more films to see whats going on. People answered you on other board too.

ltassone 08-24-2008 02:22 PM

seen him several times
 
Quote:

Originally Posted by razzle51 (Post 353456)
NO 1 you should have never taken your self off Narcotics. Glad you are ok. Go back to the NS that did your surgery . If you havent since your surgery you really need to get back to him to take more films to see whats going on. People answered you on other board too.

Hey, seen him several times. but nothing else is going on. I just thought there would be a better way to deal with all of this . I see my shrink, therapist and pain doc. Been through PT and a ton of other stuff but to no avail. Just feeling like a failure. You think its ok to continue on pain meds? My husband and sis make me feel like an addict! I just want to function and be there for the kids! especially the youngest who just became a freshman. Without any Extra help everything is a mess. I miss life! Lori T.:confused::confused:


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