Had MP for 5 years
 

Got Mp "out of the blue in 2001. It was really bad at first - shocks, couldn't evewn touch it with sheet, etc. You all know the symptoms. The worst for me was that it has significantly imparied my walking. As soon as I walk even for 15 mnutes - it goes wild. I can only stroll - slowly -not walk steadily. The shocks, etc. come and go and have improved - but it does get aggravated by driving, walking, etc. I really has made me lose my indpendendce. I haven't been able to walk my dog for 5 years or even go shopping in a mall. If yours is really bad I'd get a handicapped sign. I have one and it is so helpful. Then I use the driving carts in the stores.
I took numerous drugs and had injections - no help.
Good luck to anyone with this dreaded MP
Sydney

Sidney

Thanks for sharing. I appreciate your helpful information. Having a handicap parking place is a great help and carts in stores to ride. I hope you can get some type of relief too.
The sensitivity to touch is my biggest problem at the present with MP. I have been told the meds in time need to be increased in order to work. I have the pain at a level I can cope most times, except for the sensitivity of touch.
I have stenosis and it causes me to sit down after standing or walking. Sometimes it is better than others, like our MP that can vary too.
I am thankful for everyone here who shares like you have. It helps a great deal to talk to people who understand what we are going through. I am always amazed at the good information we share and access here on Neuro Talk Communities.
Take Care and thanks for taking your time to reply.

hi sydney i have only just registered i got my mp when i had surgery.my symptoms have recently flared up and i am upset and desperate for more imformation. i only had keyhole surgery to be streralised and i have made an official complaint.i am a part time hairdresser 15 hours a week and i feel i may need to be signed off work. i am taking gabapentin and amitriptyline and a few days ago i was given skin patches from the pain clinic ... take care