ahhh new diagnosis!!!!
 

ok officially have the new diagnosis of chronic pain syndrome or as the amazing pain doc called it CRPS......need to do more research and find out more.....gonna have nerve blocks on the 9th sooooooo looking forward to that scenario....not sarcastic..as ususal.......I am excited to have a few answers and get a real doc who treats you like a human not a money making machine!!!!!!!!!!!!!!! I am soooooooooh happy to have met him and will recommend him to all who are in the Toronto area in Canada PM me

he did a great exam and then the dx with also neuropatic pain added in the mix......I am still convinced tos......but hey what the hell do I know.....I am now thinking pec syndrome....hmmmmm as most who get tos get the pec syndrome. so hi ho hi ho it's off to nerve blocks I go!!!

He will do the tsn ....transcapular nerve......and the cervical paravertrebral one.......and trigger point injections as well.....so any input guys?

I am also told to read "Managing pain before it manages you" by margaret a caudill.....she has phd and is supposed to be good book......any input there either guys??????

love to hear from you all...or some .....or at least one of you on opinions and input!!!!
Thanks all
hugs and prayers,
Victoira

I'm sorry
 

Hi,
You must have checked this site but in case if you haven't.
http://www.rsdfoundation.org/en/index.html

Can't think of anything (it's almost my bed time).
If I find something useful, I'll let you know.

Yasuko

You may want to poke your head in the RSD forum in this site. Lots of great ppl ther (like ME! LOL!).

I'd much rather have TOS to be honest. :( TOS is fixable. Also, if you pop on over there and tell them WHERE he things your crps is, they can tell you wewhere he should be dong the blocks. I've never heard f those areas, but my RSD is in the upper extremeties. I'm assuming yours is too since you had a TOS problem. But it doesn't make sense.

Hugs
LisaM

I think I read that book - the title sounds familiar.
I liked this one better
The Pain Cure
by Dharma Singh Khalsa , MD with Cameron Stauth
The proven Medical Program that helps end your Chronic Pain

What i read so far is about different levels of chronic pain and how it creates it's own cycle in the brain, spasms, referred pain- like headaches, TMJ, sinus problems, ect.

Pg 33- "chronic pain syndrome is characterized by physical inactivity, inadequate sleep, depression, poor nutrition, fear, anxiety, reliance on medications, and mental lethargy...."these traits are almost certain to lock in- and amplify- pain signals that have become engraved upon the nervous system."

She advocates nutritional therapy, physical therapy, medication changes{ to natural,homeopathic and herbs}and mental and spiritual pain control

It may not work for all completely - but maybe some it will help.

Awww
 

I'm so sorry. That is the worst news I've heard in days.

But there is always hope.

Stellate Ganglion Blocks are your best chance of putting this into remission if done RIGHT AWAY.

They are done is sets. Check it out at
http://www.reddinganesthesia.com/SGB%20FAQs.htm

Take care and keep us updated please.

Hope

thanks
 

Hi guys,

Thanks for all your input....can't wait to get the nerve blocks...in a lot of pain today!!!!! I want to get this delt with asap....I am not happy dealing with pain 8/10. I would much rather have 3/10 can function on that....but now I am doing my ironing....HATE ironing!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ! oh well life is rough isn't it. I do wish that thursday would come faster then ever and not just for mcsteamy, mcdreamy or izzy!!!!!!!

take care all,
Victoria

Read about the blocks ....I had bil SG sympathectomies 16 years ago...so that one is non starter for me.
Victoria hope he block(s) help and pain levels go down...

And wish everyone else a better day

Hx

So Sorry for all the Suffering...
 

You've had more than your share already.. but wait.. haven't we all???

I hope the shots are helpful and give you the respite from pain you need. ;)

Vic, are you resting enough and not pushing yourself so that you can heal?? Last time we "talked " you were cleaning and ironing. Are you doing any p.t. or does your Dr.Want you to hold off until after the blocks??

Take care dear one andlet us know how it goes.

((Hugs))
G~ :)

I am trying to understand, what to do ....
 

What are you guys talking about . I am having really bad pain in my sciatica and my lower extremities ?I was told not to bend over or carry anything , well my husband got really sick and we had to move and I bent over and moved a house and 35 yrs of stuff grrrrr . Well I am still in the process of moving and getting really scared about the symptoms I am having . My leg between the hip and knee is in constant pain It is hard to straighten up . This is exactly what my doctor warned me about . I intend to never lift again but am trying to settle in my hubby who has ms. So what if any advise do you have .I am 55 female with poor nutrition and want wellness . I am to start physio out here in the country in 2 weeks and am going to focus on me and my wellness not his anymore .Got to go cannot sit and type will seize up any help or advise for those who have gone before me I am desperate for answers. judylouwho or michelle

Victoria
 

Crossing my fingers that the shots help. I am home tonight if you need anything...just give me a call.

Talk soon!
J