NeuroTalk Support Groups - I take it the absence of everyone here is a GOOD thing.

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Hydrocephalus (https://www.neurotalk.org/hydrocephalus/)

- - I take it the absence of everyone here is a GOOD thing. (https://www.neurotalk.org/hydrocephalus/54259-absence.html)

I take it the absence of everyone here is a GOOD thing.

I hope all is well with everybody. :grouphug: :)

What is hydrocephalus?

I am fairly new to this site so forgive my ignorance, but what is hydrocephalus? I was recently diagnosed with Myasthenis Gravis, so all of this is still a blur to me..........When you get a chance, can you lease let me know what your disease is? I'm not trying to be nosy, just curious!

Take care!
Erin Hermes

Quote:

Originally Posted by sjp_fanatic (Post 368477)

I hope all is well with everybody. :grouphug: :)

Quote:

Originally Posted by erinhermes (Post 369465)

In non-medical straight-to-the-point wording... "water on the brain", the "water is just CSF (cerospinal fluid) that, for some reason, doesn't drain off properly. Some of us have a shunt, myself included, some of us have two shunts, I know only of one person, and some of us have had an ETV. (I think that is what it is called. I hope someone who has one can write and explain this better.)

I also think there is something called the third vent. I have only learnd about this by keeping up with all the hydro boards I am on.

I hope I helped in some small way. :);):o:wink:

i think its called a third ventriculostomy, im not really sure what it is but i had one when i was 8 after my shunt malfunctioned, but im now 19 and doin well!

Quote:

Originally Posted by erobicob13 (Post 418054)

i think its called a third ventriculostomy, im not really sure what it is but i had one when i was 8 after my shunt malfunctioned, but im now 19 and doin well!

Thank you, erobicob13;418054. :)
You're welcome, erinhermes. :)

Quote:

Originally Posted by erobicob13 (Post 418054)

i think its called a third ventriculostomy, im not really sure what it is but i had one when i was 8 after my shunt malfunctioned, but im now 19 and doin well!

The ETV (endoscopic third ventriculostomy) is when the neurosurgeon makes a burr hole incision in the base (floor) of your third ventricle and watches the CSF pulsate through the opening for several minutes then he/she back tracks out of the brain and close you up. If the burr hole stays opened and your neurosurgeon believes it will not complicate matter your shunt can be removed. The ETV is an alternative to a shunt but there are many flaws and some complications. Basically it depends on the patient outcome and how they have dealt with hydrocephalus up to that point.

The Hydrocephalus Association Fact Sheet says:
In endoscopic third ventriculostomy, a small perforation is made in the thinned floor of the third ventricle, allowing movement of cerebrospinal fluid (CSF) out of the blocked ventricular system and into the interpenducular cistern (a normal CSF space). Cerebrospinal fluid within the ventricle
is thus diverted elsewhere in an attempt to bypass an obstruction in the aqueduct of Sylvius and thereby relieve pressure. The objective of this procedure, called an “intracranial CSF diversion,”
is to normalize pressure on the brain without using a shunt. Endoscopic third ventriculostomy is not a cure for hydrocephalus, but rather an alternate treatment.

For more information go to there website hydrocassoc.org