Hello Looking for fibro friends
 

Hi,
My name is Denise.I am 49 and married to a wonderful man who understands me and supports me.We have 4 grown kids and 1 grandson.
In 2000 I was diagnosed with RSD after a fracture to my left foot.
It was diagnosed as RSD 4 months later when I could not walk on it and the pain was well you know.... off the charts.I have had 3 blocks with worse symptoms after than before.... for me the blocks seemed to make it move from the foot to EVERYWHERE. I did have a bad reaction during the 2nd block.3rd block no reaction but no pain relief either
I joined Braintalk and followed a lot of advice from other members and put the RSD in remission for several years with only a few flare ups when I did way too much.
However now it's back even if I do nothing.My husband says I have been living in denial about it and I think he's probably right. For years I looked for all kinds of things that could be causing my problems.In the last 5 years I have been to so many doctors I lost count.I have been diagnosed with RSD, Fibromialgia (which I dismissed immediately big mistake on my part) , Arthritis, Mitral valve prolapse,tackycardia, osteoporosis,Stomach ulcer,
IBS ( I think it's because of the meds I take)Anziety and probably a few others I can't think of now as my memory is not what it used to be.I have off and on pain in almost every part of my body.I refer to it as stupid pain because it is there today and gone tomorrow then back again.
For several years I thought I just needed to get over it.Pull myself up by the boot straps, you know think right, act right and you will be alright.Mind over matter well I guess I am here today to admit that I need help.
RSD is here to stay and I need coping skills and friends that understand RSD and Fibro.
I live in Las Vegas it's a fun town if you feel good but just another city if you don't.It's also a hard town to make friends in everyone is so busy making money or throwing it away.Too busy for a friendship I miss friendly people.I know their are some here but they must hide away in their homes like me.It's way too hot to go out it makes the RSD and Fibro worse
I look forward to talking, learning and make friends on this forum.
I hope you are having a good day .
Thanks for taking the time to read my post.
Denise

Hi Denise

I am Donna, and have 3 sons, two which are grown and have a son each.
And one has 3 like step daughters which I call my granddaughters.

My third son is 17 and has epilepsy and has been a real challenge at times.
He is a wonderful young man and I'm so proud of him. He overcomes obstacles in his life daily. From bullies at school, seizures at school and lowering of his IQ every year. Its been a rough thing for mom to understand
for the truth.

I'm a Regional Program Specialist which is just a specially neat title for a parent advocate in Indiana I handle 5 counties in my part of the state.

I too have lots of issues with my health. I had many as a child, and thought
okay I wont have to worry as a adult they are gone. Little did I know they would just return to haunt me.

I have gastroenlogical reflux disease, ulersititus colitis, abnormality in my brain, fibromyalgia, bulges in my neck, and many others I can't even think
straight. Life just finds more each day, and my husband is always just
saying you like to spend money going to the doctor.

So I just quit telling him when I have to do things, unless I need a ride.
Then sometimes I have to depend on others anyway. He is a believer
you create your own problems.

But anyway, I have mainly just a group of co-workers that care. ANd a family that isn't close to my home. But they care. And then a internet
home of friends in a forum here. ANd then I look for more daily. SO join my
group. And know I might forget to check in, but frequently visit the bi-polar
group because they are one of the friendliest most active groups. That
welcome friends.

Donna

Hi ((((Denise)))). Another fibro sufferer here. You're not alone! We understand. :hug:

Welcome Denise. Its nice to meet you. We can all use more friends. They are what help to keep us going and give the support and understanding we need. This board is especially good for that. Everyone on this board understands and knows what it is like everyday. The board and all of us friends are always available. That's what friends are for.

Hi Denise!
My name is Lisa and I am 41. I have been dx. with RSD in my hand and Fibro.also. I could really use a friend who knows the pain of both. Sorry it took so long but I just recently joined. Thanks, I look forward to talking to you more!

Hi Lisa,:hug:
I am so sorry that you also have both of these monsters.
I often wonder if RSD causes Fibro
What came first for you ?
For me it was the RSD. I got it after I dislocated the top of my foot, when I tripped over a child safety gate. Don't laugh it's true.:o
Oh go ahead it's been 9 years and even I find it funny & ironic it was a safety gate after all LOL:D
What happened to your hand?:(
How long ago was it when you were dxed with RSD?
Did you get nerve blocks for it?
Do you visit the NeuroTalk RSD forum ?:grouphug:
:eek:Sorry for all the questions :confused2:
but I am also interested in talking to someone with both RSD and Fibro

I know how it feels for me some days it feels like a truck ran over me in my sleep,some days it feels like I am the rusty tin woman of Las Vegas.
How does it feel for you?I hope you are not in a lot of pain but if ever you need to tell someone this is a great place and you can count on me responding but sometimes it's a few days between my log ons. I like the phone better typing is not my strong point.:(
I am and artist:Painter: not a writer:Writting: so I never learned to type fast I just hunt & peck:D

I have only just accepted the fibro dx even though my Rheumatologist told me 2 years ago I had it. I just wanted to blame it all on RSD and still want too. Why........ well I put the RSD into remission for a while by giving my sympathetic system a chance to heal, BUT I don't know how to put fibro into remission.
The search is on.My husband bought me 2 books on fibro.I would put up the names of the books but can't remember if that goes against any Neurotalk posting rules.Mostly I have learned I have to move every hour for at least 5-10 min. So I have been setting the oven timer and then, I have to get up and stretch even though my body wants to just sit and try to not feel any pain.I just started this week and am in a lot of pain now, but it's supposed to help bring back muscle tone before you start walking or exercising.I have no muscles left they have shrunk along with my weight before all this I weighed 125-130 now I struggle to keep my weight above 100 for my health I force myself to eat as well as drink a rice protein drink but with no appetite it's hard.
The author of one of the books (a DR with Fibro herself) says you should be getting 8 hrs of good sleep before starting an exercising plan or even changing your activity level.She sounds on track to me so I will give it a try as all the meds especially Soma have me really thinking I am becoming an addict.
I wonder if there is something about muscle relaxers that perpetuate the condition??????????????
Any thoughts about this anyone?
Well this was a lot of typing for me I like to talk a lot if you do maybe we can call each other I have vonage so long distance is free if I call you.
Have A Pain Free Day & Thanks for taking the time to read this long post.
Denise R:hug:

Hello Denise~ Nice to meet you. Boy, where do I start?? I have Fibro, Dermatographism, Polymyalgia, Osteoporosis, arthritis, hemangioma on my spine, L5-S1 spinal disc fusion, neuropathy and on top of that~~ A Neuro from Mayo said yes to MS, but wait till the brain MRI shows active lesions. Whew! Guess you can see that your'e not alone in having troubles.

I have a chronic backache every day and it's getting to be the norm. I sleep w/a contour leg pillow between my knees and w/the Fibro, I toss and turn all night.
Glad you found NT, as this place is so informative and everyone here is so helpful.

Make sure you take a look around at the other forum's too, and make yourself at home.

*also a game forum*

Gee, after reading all my complaints, I think I need to lie down.. take care Denise and welcome again.

LOL DM! I think I need to lay down as well after reading that! :hug:

Yeah, kind of pitiful, aren't I Dood???? Geez, no wonder I hate my Rheumy!! ha! He keeps giving me new initials to put behind my name. *grin*