NeuroTalk Support Groups - Tetrodotoxin (Tectin) TTX for nerve pain

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Tetrodotoxin (Tectin) TTX for nerve pain (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/55082-tetrodotoxin-tectin-ttx-nerve-pain.html)

Tetrodotoxin (Tectin) TTX for nerve pain

Has anyone heard of TTX for nerve pain? It's being tested in Canada. There was a small piece about this on a TV show.
This is from blowfish or the puffer fish. A lot of what I read states for cancer pain but the TV show also stated nerve pain, along with some research when I searched this online, it mentions nerve pain also.

The man they interviewed was pleased with the results, he was taking part in a trial study for nerve pain.

Thought I'd share it with you all in case you haven't heard about it.

It does have risks but again it's only in the trial phases.

Sounds interesting,,,thanks for the info

Let us know if you hear anything else about it!

Deb

Quote:

Originally Posted by Summertime (Post 377275)

I have heard rumour of this through my rsd support network here in Vancouver.

This is a Multicentre , Randomized, Double-Blind, Placebo-Controlled, Parallel-Design Trial of the Efficacy and Safety of Subcutaneous Tetrodotoxin (Tectin™) for Moderate to Severe Inadequately Controlled Cancer-Related Pain. I do not know if CRPS/RSD patients are included in any way. It is estimated that the clinical trail will be finished in Dec 2009.

MsL

Thank you for sharing that information with us all, I found it really helpful!!

I'm hoping this is something that can help us RSD patients. It's worth keeping an eye and ear out about any information on it.

I'll keep you updated if I hear anymore and if anyone else hears more on this please share with us.

Thanks

Quote:

Originally Posted by Summertime (Post 379743)

I'll ask my PM doctor when I see him next, I think this company approached him about it at some point in time. When we discussed this some time back he said it was still way to early in the clinical trial phase to know if there would be any benefits for CRPS. Perhaps that has changed? Will keep you posted if I learn anything new.

MsL

Hi, Yes Ive heard of it here, florida

Quote:

Originally Posted by Mslday (Post 379945)

Hi Ive read and heard about it many times here in flroida, but do not know of anyone who has prescribed it here yet. Let us know please how it works out. Thanks, cz

http://www.centerwatch.com/clinical-...oundationforpn

I found this when I was looking for any new trials for PN.