treatment for new spread area
 

Hi All,
I had a bilateral pudendalnerve block done in my pelvis about 10 days ago. No sedation was given on that day. The blocks were very painful and took long time to finish. The doc repositiion the needle many many times. One side of my pelvis has already back to baseline and felt some improvement but the other side was much much worse and with an added new symptom. My symptoms now have been constant with burning and numbing and hypersensitive. This is different prior to the nerve block and thus i suspect i may be developed RSD in one side of my pelvis. If this is the case, what is the standard treatment to stop the RSD in the new area? Is it a sympathetic nerve?
Please share your experience and many thanks,
Numb

Sorry to hear it may have spread to a new area. It's unfortunate that RSD will go where it wants, when it wants. There is no treatment to stop it spreading to a new area or to stop the RSD once it's in a new area. Nerve blocks might help calm the pain down but won't make the rsd go away from where it has gone to. If blocks work for someone, getting a series done may bring more relief each time one is done.

Call your doc as soon as you can to let him/her know about this development and see what he/she says.

Hugs,

Karen

Karen,
Were you the person having the full body RSD? If you are, do you mean all part of your body, including your truck, neck, head, face and buttocks having RSD and how have you been coping with this beast. I saw my pain management doc today and explain to him my RSD may have spread to my pelvis. He does not think so. So i will closely monitor the situation and call my other pain doc for a sympathetic block if needed. The doc i see locally is quite conservative.
Thanks for your reply!
Numb

You're welcome! I'd like to slap every doc that says RSD can't spread or can't go someplace on the body! LOL Ummm....I'm no doctor but I DO know that our body is one big nerve and since that is how the RSD "spreads", then it can affect every single part of our bodies inside and out! Having procedures done seems to up the odds for spread with a lot of us. I'm always happy to read when someone had something done and it didn't spread.

I term my RSD 'full body', though many would argue the term. I just don't know of any other term and I get tired of listing where it is! LMAO!! So, to spare my fingers, I do NOT have it in my head,face,buttocks or chest. :D Mine spread pretty fast. It took only 11 months to go from my left knee and lower leg/foot to all 4 limbs. It's been the past year that it has gone into my back as well. I know some people that had theirs spread even faster than that, like just a month or 2 and it took over everything. I don't have it internal, though the jury is out on whether or not it's affecting my bladder. There's no cause for what I feel sometimes.

As for coping....that's easy. I deal with it the same way I have for almost 6 years now...with a smile and lots of laughter! :) Not to say there hasn't been tears and lots of them but generally it's more smiles and laughs. I also keep myself as busy as possible so it keeps my mind off of any pain I feel. I experimented one time and did next to nothing for a couple of days after my usual 'busy' days. I found I really focused on the pain and each and every twinge I felt which also made things really, really bad for me mentally and physically.To preserve what sanity I still cling to, I prefer to stay busy. LOLOL

Anywho....a block might be just what you need to,hopefully, stop the new pain in it's tracks before it gets a good hold. So, don't wait too long to maybe see about that block.

Hugs,

Karen